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School of Women's & Children's Health Research Newsletter Vol. 1 Iss. 2 - August 2017

Contents: News, Grants, The Conversation, Children's Cancer Institute News, Research Group Updates, Research Resources, Seminars, ILP & Hons Students & Supervisors, HDR Students & Supervisors, Early Career Researchers, Publications.

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School of Women's & Children's Health Research Newsletter Vol. 1 Iss. 1 - April 2017

The inaugural School of Women’s & Children’s Health Research Newsletter replacing the UNSW Paediatrics Research Newsletter.
News, Grants, The Conversation, Children's Cancer Institute News, Research Group Updates, Research Resources, Opportunities, ILP & Hons Students & Supervisors, HDR Students & Supervisors, Early Career Researchers, Things to Check Out, Publications.

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Paediatrics Newsletter Edition 17 - September 2016

Contents: Potent new method for improving drug-free fertility treatment; Cancer Institute NSW Research Equipment Grants; Successful Grants; UNSW Research Infrastructure Scheme; Welcome Dr Shafagh Waters; Welcome Dr Nancy Briggs; New Vice Dean, Clinical Affairs; Congratulations Dr Susan Woolfenden; Congratulations Dr Jennifer Cohen; Medicine Academic Promotion; UNSW 2025 Strategy - Grand Challenges; NSW Health Translational Research Grants; Engaging Children in Research; Bright Alliance Building Completion; UNSW Paediatric Research Week; SCHN Child Population Health Research Forum; USyd - Ending Childhood Obesity; Higher Degree Research; Funding; Publications

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Paediatrics Newsletter Edition 16 - June 2016

Contents: $16.6 Million to research new cancer treatments; Successful Grants; Conference Awards; Press Room (Paeds); Welcome - Dr Nusrat Homaira; Emeritus Professor Les White; Stats Central; Infectious Disease Research; ASMR Gala Dinner; Alternative Funding & Telling your Story; Higher Degree Research; Funding; Publications

Paediatrics Newsletter Edition 15 - April 2016

Paediatrics Newsletter Edition 15 - April 2016

Contents: International Women's Day 2016; Academic Women in Leadership Programme; Behavioural Sciences Unit Update; Press Room (Paeds); NHMRC Applications; Successful Grants; ILP & Honours Information Evening 2016; New Online Resource for HDR Supervisors; Governance Update; Ethics & Governance Education Sessions; Early Career Academic Network; Events; Brain Sciences UNSW Symposium 2016; Paediatric Update for GPs; Funding; Publications


Paediatrics Newsletter Edition 14 - December 2015

Contents: ILP Awards 2015; UNSW Medicine ILP 3MT; Interested in supervising an ILP/Hons Student in 2017; Tow Research Awards Day 2015; Press Room (Paeds); Successful Grants 2015; NHMRC Project Grants commencing in 2017; Higher Education Research Data Collection (HERDC) return for 2015; Behavioural Sciences Unit update; SCHN Whole Genome Sequencing Project; Conferences; ILP Awards - Call for Abstracts; UNSW Paediatrics Research Week 2015; Coast Association Tow Research Awards Day; NHMRC Update; Awards and Prizes; UNSW Shutdown 2015-2016; Ethics & Governance Shutdown;  SAC and HREC dates 2016; UNSW Data Archive; Rob Gilchrist, Director of Research; EOI - Membership Randwick Paediatric Committee; Altmetric for Institutions; Funding; Publications

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Paediatrics Newsletter Edition 13 - September 2015

Contents: Promotions; Press Room (Paeds); SCHN Whole Genome Sequencing Project; Conferences; ILP Awards - Call for Abstracts; UNSW Paediatrics Research Week 2015; Coast Association Tow Research Awards Day; NHMRC Update; Major Research Equipment & Infrastructure Initiative; UNSW Medicine Research Strategy Planning; UNSW Strengths Booklet; Zero Childhood Cancer; UNSW 2025 - White Paper; Caring for Country Kids - Conference; Events; UNSW joins FutureLearn; UNSW Staff Excellence Awards 2015; NSW Reproduction Forum; SCHN Ethics Approval Timelines; Clinical Trials New Online TGA CTN Form; PaedSoc & SUPS Research Cup; UNSW Medicine Apps go Live; Canada Gairdner International Awards.

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Paediatrics Newsletter Edition 12 - June 2015

Contents: Update: The Behavioural Sciences Unit; UNSW VC Postdoctoral Fellowships; Queen's Birthday Honours; Promotions; UNSW Medicine 3 Minute Thesis Competition; Major Research Equipment & Infrastructure Initiative; SCHF Gold Telethon; SCHF Seed Grants; New Higher Degree Research Students; Higher Degree Students Self-Assessment Tool; An Evening with UNSW Centre for Big Data Research in Health; UNSW Paediatric Research Week 2015; In Memoriam Dr John Morton; Dean's Lecture Series: 'The Ticking Clock - Demographic change & future families'; Connecting patients with clinical trials; Antoinette Anazodo; Sydney Children's Hospital Clinical Research Centre; People & Culture Development Workshops.

image - Paediatrics Research Newsletters

Paediatrics Newsletter Edition 11 - March 2015

Contents: NSW takes the lead in Genomic Medicine; Saudi Arabia Professorial Visit; Successful Grants; NHMRC Project Grants 2015; WebSpirit; Paediatric Injury & Management Research Forum; SCHN Quality & Innovation Awards 2015; ILP / Honours Students; The Kirby Insitute Short Courses; An evening with UNSW Centre for Big Data Research in Health; $6,000 Travel Grants.

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Paediatrics Newsletter Edition 10 - December 2014

Contents: UNSW Paediatric Research Week; Promotions; Paeds in the Press; John Beverdige Oration; UNSW Shutdown; Grant Success 2014; New CCI Precision Medicine Centre; Top 5 Under 40 Initiative; NHMRC Project Grants Info; Cancer Council NSW Grants Info; SCHN Ethics Update; SCHN Governance Update; Tow Research Awards 2014; Gupta Travel Prize; SCHF Seed Grants.

Paediatric Newsletter Edition 8 - June 2014

Paediatrics Newsletter Edition 9 - September 2014

Contents: Cancer Institute NSW Premier's Awards; Promotions; Paeds in the Press; Higher Degree Research Thesis Submissions; ILP Awards; UNSW Major Research Equipment and Infrastructure Initiative 2014; Conference Presentations; PainBytes; Crowd-Funding; SCHN Ethics Update; SCHN Governance Update; Short Courses; Psychological Care Research; Sydney Children's Hospital Genetics.

Paediatric Newsletter Edition 8 - June 2014

Paediatrics Newsletter Edition 8 - June 2014

Contents: Sydney Children's Hospital Foundation Gold Dinner; New Clinical Trials Manager; Successful Grants; Congratulations Dr Alexandra Johnson; Congratulations Dr Eddy Pasquier; 3 Minute Thesis Competition; New HDR Students; Neonatal PhD Project Available; 'Beyond Milestones' Validation; New School Website; ILP / Honours Information Evening; UNSW Medicine Biostatistics Unit; The Kirby Institute Short Courses; HERDC 2013; Australasian Genomic Technologies Association - Call for Abstracts; 2014 ACPS Symposium; Jeffrey Modell Foundation Centre Opening Sydney Children's Hospital.

Paediatric Newsletter Edition 5 - September 2013

Paediatrics Newsletter Edition 7 - April 2014

Contents: Awards, Appointments, Successes; New School website; SCHN Ethics and Governance, ANZCHOG – Quality of Life Workshop; Masters and PhD Support; Researcher Development Unit; Paeds in the Press: SWIM Funds help support sufferers (Dr John Widger), Can we – and should we – make laws against cancer? (Conjoint Prof Bernard Stewart), Do we need to put an end to hard contact sports? (Dr Rebecca Nogajski)

Paediatric Newsletter Edition 5 - September 2013

Paediatrics Newsletter Edition 6 - December 2013

Contents: EOI – PhD Opportunities; Funding Success 2013; Feature: CareTrack Kids; Feature: Dr Rebecca Mitchell; Update: Sydney Children’s Clinical Trial Centre; NHMRC Project Grants; Research Week 2013; WebSpirit – Paediatric Trials Network Australia

Paediatric Newsletter Edition 5 - September 2013

Paediatrics Newsletter Edition 5 - September 2013

Contents: Introducing Dr Kylie-Ann Mallitt; Conferences, Funding Success, Promotions; Behavioural Sciences Unit – Survivorship Study; UNSW Paediatrics Research Week and Research Showcase; Discipline of Paediatrics ILP Awards; Publication Authorship; Major Research Equipment and Infrastructure Initiative; 50th Anniversary Randwick Hospitals Campus; Feature: Early Years Research Group; Feature: Dr Nadine Kasparian; Feature Dr Eddy Pasquier

Paediatrics Research newsletter 4 (June 2013)

Paediatrics Newsletter Edition 4 - June 2013

Contents: New PhD students; VC Post-Doc research fellowships; ILP awards 2013; Researcher Profile: Dr Meredith Ward; Feature: The Kids Cancer Centre; Researcher Profile: A/Prof Richard Cohn; Update: Ethics and Governance; Researcher Profile: Dr Sandra Chuang; Adolescent Health Research Forum

Paediatrics Research newsletter 3 (March 2013)

Paediatrics Newsletter Edition 3 - March 2013

Contents: ILP Students/Higher Degree students/2012 Publications; Congratulations; HREC Meeting dates 2013; Sydney Children’s Hospital Clinical Trial Centre; NSW Health Clinical Trials Support; Department of Community Child Health; Introducing: A/Prof Karen Zwi, Dr Sue Woolfenden; Dr Debbie Perkens; Michelle Jersky; Becoming a UNSW Conjoint; Academic Promotion; Women in Research Network; Highlights from DVC(R) Bulletin; Conference Abstracts; Upcoming Events; Funding Opportunities; Publications; Social Media

Paediatrics Research newsletter 2 (December 2012)

Paediatrics Newsletter Edition 2 - December 2012

Contents: ILP Students; ARC Future Fellowships Info Session; HREC dates 2013; Becoming a conjoint; Library; e-Books; Authorship rules; NHMRC CRE workshop;  NHMRC Seminar; ERA 2012; Council of Children’s Nurses Conference 2013; Abstract: Dr Ammira Al-Shabeeb; Funding Opportunities; NHMRC Projects Info sessions; International Congress of Paediatrics; Conference Presentations; Publications

Paediatrics Research newsletter 1 (September 2012)

Paediatrics Newsletter Edition 1 - September 2012

Contents: Researcher profile: Dr Tony Roscioli; USNW MREII 2012; External Review of Medicine; External Review of Paediatrics; Library; eBooks; Authorship rules; Researcher Profile: Dr Michelle Farrar; Funding Opportunities; Events/Seminars/Training; Publications


2017  |  2016  |  2015  |  2014 2013

To be ill is human: why normalising illness would make it easier to cope with

Why are we so shocked when we, or someone we know, becomes ill? Why are many people scared of illness and unable to support their loved ones when illness strikes? And why do so many people still think “it won’t happen to me”?
These questions strike at the heart of our relationship between sickness and health and our reluctance to confront illness as part of our everyday lives.
Author: Dr Gill Hubbard, Reader in cancer care, University of Stirling; Prof Claire Wakefield, UNSW Sydney.
Originally appeared in The Conversation March 21, 2017.

The tragedy of Aviana

It’s the stuff of every parent’s nightmare: a rare genetic disorder means Bethan and Johnny’s perfect baby will be lucky to see her first birthday.
Aviana has spinal muscular atrophy type 1 (SMA1). Most babies with the rare genetic condition die before their first birthdays. The average life expectancy without treatment is nine months. There is no cure.
When I meet Aviana at the Sydney Children’s Hospital she drinks me in. She seems to inhale every detail.
“They are so captivating,” says Dr Michelle Farrar, a neurologist at the Sydney Children’s Hospital specialising in neuromuscular disorders.
The hospital treats four to six babies with the condition each year.
“It’s just so devastating,” says Dr Farrar. “They have normal thinking and intelligence. They can smile and talk, but they are progressively paralysed.”
Originally appeared in The Sydney Morning Herald March 12, 2017.

Talking Point: It shows promise, but cannabis is not yet a cure for all our ills

A PARENT tells me about watching helplessly as their infant daughter suffers, a frightened look on her face before her whole body stiffens and face turns purple. This process repeats again and again, day and night, every day. With each day, their daughter seems to lose her spark and her personality as brain development slows.
This is something that across Australia, thousands of families and people with severe epilepsy are dealing with 24 hours a day. In the clinic, I see many families experiencing this panic, desperately seeking a solution and asking for medicinal cannabis because they have heard it might help.
How do I respond to this parent?
The issue of safety often gets lost in the debate about medicinal cannabis. I would say to this parent that, while I understand their desperation, the number one principle that I use to guide my decision-making is safety — that is, do no harm. This is even more important when treating children.
Author: Dr John Lawson, Conjoint Senior Lecturer, UNSW Sydney.
Originally appeared in Mercury February 24, 2017.

Potts family hoping for clinical trial to cure Annabelle

The Potts family was thrown into disarray at the end of last year, when Annabelle was diagnosed with Diffuse Intrinsic Pontine Glioma (DIPG) on December 30.
DIPG is a highly aggressive brain tumor and the family was given the devastating news that Annabelle had only one to three months to live without treatment.
The family’s hope now rests in finding a clinical trial that will be suitable for Annabelle, and are looking to the Kid’s Cancer Centre, which has provided care to children and adolescents with cancer and blood diseases for more than 50 years.
Adam and his wife, Kathie, have been in contact with Dr Ziegler from UNSW.
Originally appeared in The Daily Advertiser February 24, 2017.

Indigenous student a shining example of the power of a mentor

The first Indigenous student accepted into UNSW Medicine’s Honours program intends to pay it forward by mentoring students starting their training to become doctors.
Working under UNSW Associate Professor Nadine Kasparian, one of UNSW’s 20 Rising Stars, [Ashley] Towney will study the impact of anxiety on mothers and their unborn child following fetal diagnosis of congenital heart disease.
Originally appeared in UNSW Newsroom February 22, 2017.

'I don't know how you cope with that': How Ciara beat the odds

"This is your new life," a stranger told Michaela Flanagan as she microwaved her dinner in the kitchen at the Sydney Children's Hospital.
When a child is diagnosed with an aggressive cancer, uncertainty becomes a parent's only constant.
The NSW government announced on Wednesday $11.6 million in funding for cancer research through the Cancer Institute NSW, including $1.3 million in grants to investigate new treatments for neuroblastoma, which accounts for one in six of all childhood cancer deaths.
The funding awarded to researchers at the Children's Cancer Institute at UNSW for neuroblastoma research includes grants to Dr Daniel Carter and Dr Pei Yan Liu who will test drugs targeting certain genes present in high-risk neuroblastomas that make them resistant to treatment.
A separate grant to Dr Orazio Vittorio will work on combining catachin, an antioxidant found in green tea with a sugar based compound, dextran, to target high levels of copper, which plays a key role in the progression and aggressiveness of neuroblastoma.
Originally appeared in Blue Mountains Gazette February 15, 2017.

Glow-in-the-dark creatures helping scientists identify toxic cells

Using glow-in-the-dark genes from animals to light up toxic cells, Sydney scientists have made advances against two of the cruellest diseases.
Biologists from the Children's Cancer Institute have honed a technique for tracking down leukemi a cells by inserting genes from fireflies to make them luminous.
Originally appeared in The Australian February 13, 2017.

Spinal muscular atrophy: New hope for Australian parents of SMA infants

Bethan and Johnny McElwee's daughter Aviana was just a few months old when a Darwin paediatrician queried the behaviour behind her nickname, Little Miss Froggy.
"Our paediatrician thought she might have a hip problem." But a hip scan came back clear.
It was a follow up blood test that revealed an anomaly in Aviana's genes — a rare and little-known disease that, at its most ruthless, will kill an infant before age two.
Called spinal muscular atrophy (SMA), the genetic disorder wastes away the nerves that control muscle movement, leading to progressive paralysis followed by weakness in breathing and swallowing.
Few parents know they are silent carriers of the recessive gene until symptoms like floppiness start to present in their children, and there is currently no routine testing of newborns for SMA in Australia.Yet it is the leading genetic cause of infant death, according to Michelle Farrar, a leading SMA expert and neurologist at Sydney Children's Hospital.
Originally appeared on ABC Radio Darwin January 29, 2017.

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IVF success rates, safety improving

The chances of having a baby following IVF treatment are steadily improving, according to a new UNSW report. The Assisted Reproductive Technology in Australia and New Zealand 2014 report, by UNSW’s...
2 September 2016

Young people with cancer should have affordable options to preserve their fertility

OPINION: Due to significant advances in diagnosis and treatment, many Australians with cancer can expect to survive and lead a normal life. For those of reproductive age this includes...
26 August 2016

OPINION: Emerging infertility treatment could be a less invasive and cheaper alternative to IVF

OPINION: In-vitro fertilisation (IVF) has helped infertile couples start families for more than 35 years. But while the technology has evolved, it remains an expensive, invasive process that can have significant side-effects...
24 August 2016

World leading ovarian cancer researcher joins UNSW Medicine

Professor Ramus’ research focuses on two major areas of ovarian cancer: identifying women at risk and profiling changes in tumours in the hope of developing targeted treatments for women already diagnosed. With reference to her work on identifying risk, Professor Ramus’ work concentrates on genetics...

23 May, 2016.

Urinary incontinence can be a problem for women of all ages, but there is a cure

OPINION: Urinary incontinence is urine leakage from a loss of bladder control that mainly affects women after childbirth. But it can happen to anyone. Around 37% of Australian women...
15 February, 2016.

Vulvar cancer rates surge in Australian women under 60

Over the past thirty years, vulvar cancer rates have increased by 84 per cent in women under 60 years of age, new research shows...
22 January, 2016.

Mothers, babies and the important work of the NPESU

The way we are having babies in Australia is changing. Since 1979, when the National Perinatal Epidemiology and Statistics Unit (NPESU) was established, women have been having their babies later in life, and having fewer of them...
30 September, 2015.

New study puts paid to 'eating for two'

A UNSW study has found expectant mothers conserve additional energy and extract more calories from food, without needing to consume significantly more, challenging the adage of needing to 'eat for two’ during pregnancy...
25 September, 2015.

World-first fallopian tube biobank provides new insights into failed pregnancies

A world-first biobank of human fallopian tube samples established by the Royal Hospital for Women and UNSW will give new insights into ectopic and failed pregnancies...
2 September, 2015.

UNSW experts appointed to NHMRC committees

Professor William (Bill) Ledger, head of obstetrics and gynaecology at UNSW’s School of Women's & Children's Health, has been appointed to the NHMRC Embryo Research Licensing Committee...
25 August, 2015.

Surging house prices and demographic change: why fertility is threatened

Surging house prices combined with radical social and demographic change are posing a serious threat to the fertility of Generation Y, demographer and social researcher Mark McCrindle...
3 June, 2015.

Do too many couples expect IVF to solve their fertility problems?

OPINION: All too frequently I am faced with breaking bad news to disappointed couples in their early forties who expected IVF to solve their fertility problems. The sad truth is...
28 May, 2015.

New screening technique could pick up twice as many women with ovarian cancer

A new approach to ovarian cancer detection developed by UNSW Vice-Chancellor Ian Jacobs could lead to widespread screening for the disease that kills about two in three sufferers in Australia.
5 May, 2015

New online registry will help cancer patients preserve their fertility

In a world-first, the Randwick Hospitals Campus and UNSW Australia have launched an online registry that will capture a cancer patient’s journey from diagnosis through to survivorship, and which can be used to help them plan for a family.
13 January, 2015

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