Associate Professor Nadine Kasparian

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Academic

Discipline:

Paediatrics

Nadine Kasparian is Associate Professor in Medical Psychology at UNSW. She is also Head of Psychology at the Heart Centre for Children, where in 2010, under the auspices of The Sydney Children's Hospitals Network and UNSW Sydney, A/Prof Kasparian established Australasia's first integrated psychology research program and clinical service dedicated to childhood heart disease.

Current roles include:

National Heart Foundation Future Leader Fellow (2017-2020)
Co-Founder, Cardiac Society of Australia and New Zealand (CSANZ) Psychology and Supportive Care Working Group (2016-)
Research Lead (Quality of Life), Australia and New Zealand Fontan Registry (2015-)
Research Lead (Psychology), Australia and New Zealand Congenital Heart Disease Registry (2016-)
Chair, Psychosocial Round in Cardiac Care, Heart Centre for Children, The Sydney Children’s Hospitals Network (2010-)

Since 2007, A/Prof Kasparian has published, or had accepted for publication, over 100 journal articles, abstracts and book chapters, and 10 evidence-based interventions.

In 2015 Nadine developed the Perinatal Psychology course in the UNSW Master of Women's Health degree. This was the first time a course of this kind had been offered at UNSW. She also regularly lectures and provides workshops for a range of organisations, including NSW Institute of Psychiatry, and numerous overseas-based groups.

Society Memberships & Professional Activities:

Co-Founder, Cardiac Society of Australia and New Zealand (CSANZ) Psychology and Supportive Care Working Group (2016-)
Research Lead (Quality of Life), Australia and New Zealand Fontan Registry (2015-)
Research Lead (Psychology), Australia and New Zealand Congenital Heart Disease Registry (2016-)
Co-Leader, Behavioural Science Research Program, International Melanoma Genetics Consortium (GenoMEL)
Secretary, International Psycho-Oncology Society (IPOS) Fear of Cancer Recurrence Group
Chair, Psychosocial Round in Cardiac Care, Heart Centre for Children, The Sydney Children’s Hospitals Network (2010-)
Executive Committee, National Psycho-Oncology Clinical Trials Group (PoCoG)
Executive Committee, Australian Psychological Society Perinatal and Infant Psychology Interest Group
Scientific Advisory Committee, Sydney Children's Hospitals Network Ethics Committee
Member, Australian Psychological Society (APS)
Member, World Association for Infant Mental Health
Member, International Society of Community Genetics and Genomics

School:

Discipline of Paediatrics

Phone:

(02) 9382 5510

Email:

n.kasparian@unsw.edu.au

University role:

Senior Research Fellow (NH&MRC)

Qualifications:

BA (Psych, Hons I), PhD (Medical Psychology), Grad Certificate (Infant Mental Health), MAPS

Grants:

A/Prof Kasparian is the recipient of two research fellowships from the National Health and Medical Research Council of Australia (NHMRC). She has a career total of over $17 million in competitive research funding.

Awards:

Future Leader Fellowship, National Heart Foundation (2016).
'Rising Star Who Will Change Our World', The University of New South Wales (2015).
Award for Contribution to the Prevention or Management of Child Abuse and Neglect, The Sydney Children's Hospitals Network (2014).
International Psycho-Oncology Society Hiroomi Kawano New Investigator Award for Outstanding Contributions to Research (2011).
GenoMEL International Exchange Program Award (2011, 2008).
Dean's Rising Star Award, UNSW Medicine, University of NSW (2010).
The Kerry Lockhart Perinatal and Infant Mental Health Award (2010).
The CASS Foundation Early Career Researcher Travel Award (2010).
Excellent PhD Thesis in Psychology Award, The Australian Psychological Society (2008).
Best Presentation, Australasian Society of Behavioural Health and Medicine (2008).
Young Tall Poppy Science Award, Australian Institute of Policy & Science, NSW Office for Science and Medical Research (2007).

Research

Research activities:

A/Prof Kasparian's research focuses on improving the health and well-being of infants, children, adults and families affected by critical or chronic illness. Her multidisciplinary team of researchers and clinicians lead projects to:

Discover factors that contribute to psychological and neurobiological risk and resilience
Develop and implement cost-effective psychological interventions and treatments
Understand patient and family experiences of new and emerging health technologies
Cultivate compassionate teams in health and medicine
Rapidly translate evidence into clinical practice and health policy

To undertake this work Nadine’s team uses a variety of research designs, including:

Large, multi-centre randomised controlled trials
Health service evaluations
Prospective cohort studies
Economic evaluations and cost-effectiveness trials
In-depth qualitative analyses
Cross-sectional studies
Systematic reviews of the literature

Nadine's team is passionate about developing new and innovative ways of providing the best possible care to infants, children, adults and families from the time of medical diagnosis, through treatment, important life transitions, and beyond. This includes work involving people of all ages with complex congenital heart disease or rare and life-threatening genetic heart conditions, as well as their parents, siblings and wider family. We are also committed to better understanding and addressing the needs of bereaved families.

In addition to work in childhood heart disease, Nadine's team also applies their clinical research approach to other medical conditions, such as melanoma and other cancers, neuromuscular diseases, severe familial intellectual disability, and other critical or chronic illnesses.

Socio-economic Objective (SEO) tags:

Child Health

Mental Health Services

Behaviour and Health

Field of Research (FOR) Tag:

Paediatrics

Health, Clinical and Counselling Psychology

Cardiology (incl. Cardiovascular Diseases)

Neurobiology

Mental Health

Fetal Development and Medicine

Health and Community Services

Cancer and related disorders

Epigenetics (incl. Genome Methylation and Epigenomics)

Teaching & Supervision

Supervision keywords:

prenatal diagnosis

cancer

congenital heart defects

psychological adaptation

parents

mental health

genetics

Media

Facebook:

https://www.facebook.com/UNSWPaediatrics

Publications related to this Person

Book Chapters

Journal articles

Thompson JR; Smith AL; Lo SN; Kasparian NA; Saw RP; Dieng M; Seaman L; Martin LK; Guitera P; Milne D; Schmid H; Cust AE; Bartula I, 2022, 'Protocol for the implementation of a stepped-care model to address fear of cancer recurrence in patients previously diagnosed with early-stage (0-II) melanoma', BMJ open, vol. 12, pp. e054337, http://dx.doi.org/10.1136/bmjopen-2021-054337

Perazzo D; Moore R; Kasparian NA; Rodts M; Horowitz-Kraus T; Crosby L; Turpin B; Beck AF; Hutton J, 2022, 'Chronic pediatric diseases and risk for reading difficulties: a narrative review with recommendations', Pediatric Research, http://dx.doi.org/10.1038/s41390-022-01934-y

Kasparian NA; Sadhwani A; Sananes R; Blumenfeld E; Butcher JL; Cassidy AR; Cox SM; Kenowitz J; Miller TA; Sanz JH; Wolfe KR; Ilardi D, 2022, 'Telehealth Services for Cardiac Neurodevelopmental Care during the COVID-19 Pandemic: A Site Survey from the Cardiac Neurodevelopmental Outcome Collaborative', Cardiology in the Young, pp. 1 - 8, http://dx.doi.org/10.1017/S1047951122000579

Tacy TA; Kasparian NA; Karnik R; Geiger M; Sood E, 2022, 'Opportunities to enhance parental well-being during prenatal counseling for congenital heart disease', Seminars in Perinatology, pp. 151587 - 151587, http://dx.doi.org/10.1016/j.semperi.2022.151587

Luigjes-Huizer YL; Tauber NM; Humphris G; Kasparian NA; Lam WWT; Lebel S; Simard S; Smith AB; Zachariae R; Afiyanti Y; Bell KJL; Custers JAE; de Wit NJ; Fisher PL; Galica J; Garland SN; Helsper CW; Jeppesen MM; Liu J; Mititelu R; Monninkhof EM; Russell L; Savard J; Speckens AEM; van Helmondt SJ; Vatandoust S; Zdenkowski N; van der Lee ML, 2022, 'What is the prevalence of fear of cancer recurrence in cancer survivors and patients? A systematic review and individual participant data meta-analysis', Psycho-Oncology, http://dx.doi.org/10.1002/pon.5921

Marshall KH; Pincus HA; Tesson S; Lingam R; Woolfenden SR; Kasparian NA, 2022, 'Integrated psychological care in pediatric hospital settings for children with complex chronic illness and their families: a systematic review', Psychology and Health, http://dx.doi.org/10.1080/08870446.2022.2072843

Chu KA; Schwartz C; Towner E; Kasparian NA; Callaghan B, 2021, 'Parenting under pressure: A mixed-methods investigation of the impact of COVID-19 on family life', Journal of Affective Disorders Reports, vol. 5, pp. 100161, http://dx.doi.org/10.1016/j.jadr.2021.100161

Kan JM; Dieng M; Butow PN; Mireskandari S; Tesson S; Menzies SW; Costa DSJ; Morton RL; Mann GJ; Cust AE; Kasparian NA, 2021, 'Identifying the ‘Active Ingredients' of an Effective Psychological Intervention to Reduce Fear of Cancer Recurrence: A Process Evaluation', Frontiers in Psychology, vol. 12, http://dx.doi.org/10.3389/fpsyg.2021.661190

Sood E; Lisanti AJ; Woolf-King SE; Wray J; Kasparian N; Jackson E; Gregory MR; Lopez KN; Marino BS; Neely T; Randall A; Zyblewski SC; Brosig CL, 2021, 'Parent mental health and family functioning following diagnosis of CHD: A research agenda and recommendations from the Cardiac Neurodevelopmental Outcome Collaborative', Cardiology in the Young, vol. 31, pp. 900 - 914, http://dx.doi.org/10.1017/S1047951121002134

McDonald HM; Sherman KA; Kasparian NA, 2021, 'Factors associated with psychological distress among Australian women during pregnancy', Personality and Individual Differences, vol. 172, http://dx.doi.org/10.1016/j.paid.2020.110577

Tesson S; Swinsburg D; Kasparian NA, 2021, 'Maintaining Momentum in Infant Mental Health Research during COVID-19: Adapting Observational Assessments', Journal of Pediatric Psychology, vol. 46, pp. 254 - 263, http://dx.doi.org/10.1093/jpepsy/jsab020

Verrall CE; Yang JYM; Chen J; Schembri A; D'Udekem Y; Zannino D; Kasparian NA; Du Plessis K; Grieve SM; Welton T; Barton B; Gentles TL; Celermajer DS; Attard C; Rice K; Ayer J; Mandelstam S; Winlaw DS; Mackay MT; Cordina R, 2021, 'Neurocognitive Dysfunction and Smaller Brain Volumes in Adolescents and Adults with a Fontan Circulation', Circulation, vol. 143, pp. 878 - 891, http://dx.doi.org/10.1161/CIRCULATIONAHA.120.048202

McDonald HM; Sherman KA; Kasparian NA, 2021, 'A mediated model of mindful awareness, emotion regulation, and maternal mental health during pregnancy and postpartum', Australian Journal of Psychology, vol. 73, pp. 368 - 380, http://dx.doi.org/10.1080/00049530.2021.1908846

Tesson S; Butow PN; Marshall K; Fonagy P; Kasparian NA, 2021, 'Parent-child bonding and attachment during pregnancy and early childhood following congenital heart disease diagnosis', Health Psychology Review, http://dx.doi.org/10.1080/17437199.2021.1927136

Paguinto SG; Kasparian NA; Bray P; Farrar M, 2020, '“It’s not just the wheelchair, it’s everything else”: Australian parents’ perspectives of wheelchair prescription for children with neuromuscular disorders', Disability and Rehabilitation, vol. 42, pp. 3457 - 3466, http://dx.doi.org/10.1080/09638288.2019.1595749

Lisy K; Lai-Kwon J; Ward A; Sandhu S; Kasparian NA; Winstanley J; Boyle F; Gyorki D; Lacey K; Bishop J; Jefford M, 2020, 'Patient-reported outcomes in melanoma survivors at 1, 3 and 5 years post-diagnosis: a population-based cross-sectional study', Quality of Life Research, vol. 29, pp. 2021 - 2027, http://dx.doi.org/10.1007/s11136-020-02464-y

Farrar MA; Carey KA; Paguinto SG; Kasparian NA; De Abreu Lourenço R, 2020, '“The Whole Game is Changing and You’ve Got Hope”: Australian Perspectives on Treatment Decision Making in Spinal Muscular Atrophy', Patient, vol. 13, pp. 389 - 400, http://dx.doi.org/10.1007/s40271-020-00415-w

Carazo MR; Kolodziej MS; Dewitt ES; Kasparian NA; Newburger JW; Duarte VE; Singh MN; Opotowsky AR, 2020, 'Prevalence and prognostic association of a clinical diagnosis of depression in adult congenital heart disease: Results of the boston adult congenital heart disease biobank', Journal of the American Heart Association, vol. 9, pp. e014820, http://dx.doi.org/10.1161/JAHA.119.014820

Coffey MJ; Mckay IR; Doumit M; Chuang S; Adams S; Stelzer-Braid S; Waters SA; Kasparian NA; Thomas T; Jaffe A; Katz T; Ooi CY, 2020, 'Evaluating the Alimentary and Respiratory Tracts in Health and disease (EARTH) research programme: a protocol for prospective, longitudinal, controlled, observational studies in children with chronic disease at an Australian tertiary paediatric hospital', BMJ Open, vol. 10, pp. e033916, http://dx.doi.org/10.1136/bmjopen-2019-033916

Dieng M; Morton RL; Costa DSJ; Butow PN; Menzies SW; Lo S; Mann GJ; Cust AE; Kasparian NA, 2020, 'Benefits of a brief psychological intervention targeting fear of cancer recurrence in people at high risk of developing another melanoma: 12-month follow-up results of a randomized controlled trial', British Journal of Dermatology, vol. 182, pp. 860 - 868, http://dx.doi.org/10.1111/bjd.17990

O'Donovan C; Ingles J; Broadbent E; Skinner JR; Kasparian NA, 2020, 'How Patient Perceptions Shape Responses and Outcomes in Inherited Cardiac Conditions', Heart Lung and Circulation, vol. 29, pp. 641 - 652, http://dx.doi.org/10.1016/j.hlc.2019.11.003

Wan HWY; Carey KA; D'Silva A; Vucic S; Kiernan MC; Kasparian NA; Farrar MA, 2020, 'Health, wellbeing and lived experiences of adults with SMA: A scoping systematic review', Orphanet Journal of Rare Diseases, vol. 15, pp. 70, http://dx.doi.org/10.1186/s13023-020-1339-3

Schofield DJ; Tan O; Shrestha RN; Rajkumar R; West S; Rice M; Kasparian N; Boyle J; Christie L; Leffler M; Murray L; Tanton R; Li J; Roscioli T; Field M, 2020, 'IDMOD: An Australian microsimulation model of lifetime economic and social factors in familial intellectual disability', International Journal of Microsimulation, vol. 13, pp. 52 - 66, http://dx.doi.org/10.34196/ijm.00212

Strange G; Stewart S; Farthing M; Kasparian NA; Selbie L; O'Donnell C; Ayer J; Cordina R; Celermajer D, 2020, 'Living With, and Caring for, Congenital Heart Disease in Australia: Insights From the Congenital Heart Alliance of Australia and New Zealand Online Survey', Heart Lung and Circulation, vol. 29, pp. 216 - 223, http://dx.doi.org/10.1016/j.hlc.2018.12.009

Zentner D; Celermajer DS; Gentles T; d'Udekem Y; Ayer J; Blue GM; Bridgman C; Burchill L; Cheung M; Cordina R; Culnane E; Davis A; du Plessis K; Eagleson K; Finucane K; Frank B; Greenway S; Grigg L; Hardikar W; Hornung T; Hynson J; Iyengar AJ; James P; Justo R; Kalman J; Kasparian N; Le B; Marshall K; Mathew J; McGiffin D; McGuire M; Monagle P; Moore B; Neilsen J; O'Connor B; O'Donnell C; Pflaumer A; Rice K; Sholler G; Skinner JR; Sood S; Ward J; Weintraub R; Wilson T; Wilson W; Winlaw D; Wood A, 2020, 'Management of People With a Fontan Circulation: a Cardiac Society of Australia and New Zealand Position statement', Heart Lung and Circulation, vol. 29, pp. 5 - 39, http://dx.doi.org/10.1016/j.hlc.2019.09.010

Marshall KH; D’udekem Y; Sholler GF; Opotowsky AR; Costa DSJ; Sharpe L; Celermajer DS; Winlaw DS; Newburger JW; Kasparian NA, 2020, 'Health-related quality of life in children, adolescents, and adults with a fontan circulation: A meta-analysis', Journal of the American Heart Association, vol. 9, pp. e014172, http://dx.doi.org/10.1161/JAHA.119.014172

Paguinto SG; Kasparian NA; Bray P; Farrar M, 2020, 'Multidisciplinary perspectives and practices of wheelchair prescription for children with neuromuscular conditions', Disability and Rehabilitation: Assistive Technology, pp. 1 - 9, http://dx.doi.org/10.1080/17483107.2020.1839793

Eagleson K; McCombs D; Kasparian N; Justo R; Bora S, 2020, '650 Appraising Measures Assessing the Psychosocial Impact and Adaptation to Congenital Heart Disease in Families: A Systematic Review', Heart, Lung and Circulation, vol. 29, pp. S329 - S330, http://dx.doi.org/10.1016/j.hlc.2020.09.657

Nielson-jones C; Sharpe L; Swinsburg D; Winlaw D; Badawi N; Walker K; Costa D; Sholler G; Kasparian N, 2020, '677 Predictors of Maternal Pregnancy-Specific Anxiety After Fetal Cardiac Diagnosis', Heart, Lung and Circulation, vol. 29, pp. S341 - S341, http://dx.doi.org/10.1016/j.hlc.2020.09.684

2020, '667 WITHDRAWN:Â Journeying With Patients: A Qualitative Study of Health Care Providers’ Perceptions of a Hospital-based Psychological Service for Children With Heart Disease and Their Families', Heart, Lung and Circulation, vol. 29, pp. S337 - S337, http://dx.doi.org/10.1016/j.hlc.2020.09.674

Marshall K; D'Udekem Y; Sholler G; Costa D; Celermajer D; Winlaw D; Kasparian N, 2020, '656 Do You See What I See?: Comparing Child and Parent-Proxy Reported Health-Related Quality of Life and Wellbeing Among People With a Fontan Circulation', Heart, Lung and Circulation, vol. 29, pp. S332 - S332, http://dx.doi.org/10.1016/j.hlc.2020.09.663

Marshall K; D'Udekem Y; Sholler G; Costa D; Celermajer D; Winlaw D; Kasparian N, 2020, '687 Values, Perceived Strengths and Capabilities of People With a Fontan Circulation and Their Families: Insights From the Australian and New Zealand Fontan Registry', Heart, Lung and Circulation, vol. 29, pp. S345 - S345, http://dx.doi.org/10.1016/j.hlc.2020.09.694

2020, '216 WITHDRAWN:Â Finding a New Rhythm: Child Health-Related Quality of Life and Parental Mental Health in Families Affected by Cardiac Channelopathies', Heart, Lung and Circulation, vol. 29, pp. S132 - S132, http://dx.doi.org/10.1016/j.hlc.2020.09.223

Paida K; McKay IR; Coffey MJ; Kasparian N; Katz T; Ooi CY, 2020, 'P374 Evaluation of anxiety levels in a paediatric cystic fibrosis population', Journal of Cystic Fibrosis, vol. 19, pp. S160 - S161, http://dx.doi.org/10.1016/s1569-1993(20)30702-5

Kasparian NA; Kan JM; Sood E; Wray J; Pincus HA; Newburger JW, 2019, 'Mental health care for parents of babies with congenital heart disease during intensive care unit admission: Systematic review and statement of best practice', Early Human Development, vol. 139, http://dx.doi.org/10.1016/j.earlhumdev.2019.104837

Paguinto SG; Kasparian NA; Bray P; Farrar M, 2019, 'Parents’ perceptions of power wheelchair prescription for children with a neuromuscular disorder: a scoping review', Disability and Rehabilitation, vol. 41, pp. 2750 - 2757, http://dx.doi.org/10.1080/09638288.2018.1474496

Lum A; Wakefield CE; Donnan B; Burns MA; Fardell JE; Jaffe A; Kasparian NA; Kennedy SE; Leach ST; Lemberg DA; Marshall GM, 2019, 'School students with chronic illness have unmet academic, social, and emotional school needs', School Psychology, vol. 34, pp. 627 - 636, http://dx.doi.org/10.1037/spq0000311

Lum A; Wakefield CE; Donnan B; Burns MA; Fardell JE; Jaffe A; Kasparian NA; Kennedy SE; Leach ST; Lemberg DA; Marshall GM, 2019, 'Facilitating engagement with school in students with chronic illness through positive education: A mixed-methods comparison study', School Psychology, vol. 34, pp. 677 - 686, http://dx.doi.org/10.1037/spq0000315

Dieng M; Khanna N; Kasparian NA; Costa DSJ; Butow PN; Menzies SW; Mann GJ; Cust AE; Morton RL, 2019, 'Cost-Effectiveness of a Psycho-Educational Intervention Targeting Fear of Cancer Recurrence in People Treated for Early-Stage Melanoma', Applied Health Economics and Health Policy, vol. 17, pp. 669 - 681, http://dx.doi.org/10.1007/s40258-019-00483-6

Battistuzzi L; Franiuk M; Kasparian N; Rania N; Migliorini L; Varesco L, 2019, 'A qualitative study on decision-making about BRCA1/2 testing in Italian women', European Journal of Cancer Care, vol. 28, pp. e13083, http://dx.doi.org/10.1111/ecc.13083

Kasparian NA, 2019, 'Heart care before birth: A psychobiological perspective on fetal cardiac diagnosis', Progress in Pediatric Cardiology, vol. 54, http://dx.doi.org/10.1016/j.ppedcard.2019.101142

Verrall CE; Blue GM; Loughran-Fowlds A; Kasparian N; Gecz J; Walker K; Dunwoodie SL; Cordina R; Sholler G; Badawi N; Winlaw D, 2019, ''Big issues' in neurodevelopment for children and adults with congenital heart disease', Open Heart, vol. 6, http://dx.doi.org/10.1136/openhrt-2018-000998

Wan HWY; Carey KA; D'Silva A; Kasparian NA; Farrar MA, 2019, '"Getting ready for the adult world": How adults with spinal muscular atrophy perceive and experience healthcare, transition and well-being', Orphanet Journal of Rare Diseases, vol. 14, http://dx.doi.org/10.1186/s13023-019-1052-2

Marokakis S; Kasparian NA; Kennedy SE, 2019, 'Re: Caring for infants with posterior urethral valves: A qualitative study of parents' experiences', Journal of Urology, vol. 201, pp. 429, http://dx.doi.org/10.1097/01.JU.0000553675.33041.9a

Tesson S; Butow PN; Sholler GF; Sharpe L; Kovacs AH; Kasparian NA, 2019, 'Psychological interventions for people affected by childhood-onset heart disease: A systematic review', Health Psychology, vol. 38, pp. 151 - 161, http://dx.doi.org/10.1037/hea0000704

Denniss DL; Sholler GF; Costa DSJ; Winlaw DS; Kasparian NA, 2019, 'Need for Routine Screening of Health-Related Quality of Life in Families of Young Children with Complex Congenital Heart Disease', Journal of Pediatrics, vol. 205, pp. 21 - 28.e2, http://dx.doi.org/10.1016/j.jpeds.2018.09.037

McGill BC; Wakefield CE; Vetsch J; Barlow-Stewart K; Kasparian NA; Patenaude AF; Young MA; Cohn RJ; Tucker KM, 2019, 'Children and young people's understanding of inherited conditions and their attitudes towards genetic testing: A systematic review', Clinical Genetics, vol. 95, pp. 10 - 22, http://dx.doi.org/10.1111/cge.13253

Kan JM; Cowan CSM; Ooi CY; Kasparian NA, 2019, 'What can the gut microbiome teach us about the connections between child physical and mental health? A systematic review', Developmental Psychobiology, http://dx.doi.org/10.1002/dev.21819

Ayling L; Henry A; Tracy S; Donkin C; Kasparian NA; Welsh AW, 2019, 'How well do women understand and remember information in labour versus in late pregnancy? A pilot randomised study', Journal of Obstetrics and Gynaecology, vol. 39, pp. 913 - 921, http://dx.doi.org/10.1080/01443615.2019.1575341

Marshall K; d’Udekem Y; Sholler G; Costa D; Celermajer D; Winlaw D; Kasparian N, 2019, 'Depression and Anxiety Among People with a Fontan Circulation: Findings from the Australian and New Zealand Fontan Registry', Heart, Lung and Circulation, vol. 28, pp. S348 - S348, http://dx.doi.org/10.1016/j.hlc.2019.06.498

Marshall K; d’Udekem Y; Sholler G; Costa D; Celermajer D; Winlaw D; Kasparian N, 2019, 'Mental Health of Parents of Children, Adolescents and Adults with a Fontan Circulation: Findings from the Australian and New Zealand Fontan Registry', Heart, Lung and Circulation, vol. 28, pp. S351 - S351, http://dx.doi.org/10.1016/j.hlc.2019.06.506

Marshall K; d’Udekem Y; Sholler G; Costa D; Celermajer D; Winlaw D; Kasparian N, 2019, 'Psychological Experiences of Siblings of People with a Fontan Circulation: Insights from the Australian and New Zealand Fontan Registry', Heart, Lung and Circulation, vol. 28, pp. S352 - S353, http://dx.doi.org/10.1016/j.hlc.2019.06.509

2019, 'This abstract has been withdrawn', Heart, Lung and Circulation, vol. 28, pp. S347 - S347, http://dx.doi.org/10.1016/j.hlc.2019.06.497

Kasparian NA; De Abreu Lourenco R; Winlaw DS; Sholler GF; Viney R; Kirk EPE, 2018, 'Tell me once, tell me soon: parents’ preferences for clinical genetics services for congenital heart disease', Genetics in Medicine, vol. 20, pp. 1387 - 1395, http://dx.doi.org/10.1038/gim.2018.16

Farrar MA; Carey KA; Paguinto SG; Chambers G; Kasparian NA, 2018, 'Financial, opportunity and psychosocial costs of spinal muscular atrophy: an exploratory qualitative analysis of Australian carer perspectives.', BMJ Opem, vol. 8, pp. e020907, http://dx.doi.org/10.1136/bmjopen-2017-020907

Chong LSH; Fitzgerald DA; Craig JC; Manera KE; Hanson CS; Celermajer D; Ayer J; Kasparian NA; Tong A, 2018, 'Children’s experiences of congenital heart disease: a systematic review of qualitative studies', European Journal of Pediatrics, vol. 177, pp. 319 - 336, http://dx.doi.org/10.1007/s00431-017-3081-y

Dieng M; Kasparian NA; Cust AE; Costa DSJ; Tran A; Butow PN; Menzies SW; Mann GJ; Morton RL, 2018, 'Sensitivity of preference-based quality-of-life measures for economic evaluations in early-stage Melanoma', JAMA Dermatology, vol. 154, pp. 52 - 59, http://dx.doi.org/10.1001/jamadermatol.2017.4701

Marokakis S; Kasparian NA; Kennedy SE, 2017, 'Caring for infants with posterior urethral valves: A qualitative study of parents’ experiences', Journal of Child Health Care, vol. 21, pp. 424 - 434, http://dx.doi.org/10.1177/1367493517725833

Liang R; Meiser B; Smith S; Kasparian NA; Lewis CR; Chin M; Long GV; Ward R; Menzies AM; Harris-Wai JN; Kaur R, 2017, 'Advanced cancer patients’ attitudes towards, and experiences with, screening for somatic mutations in tumours: a qualitative study', European Journal of Cancer Care, vol. 26, http://dx.doi.org/10.1111/ecc.12600

Dieng M; Kasparian NA; Mireskandari S; Butow P; Costa D; Morton R; Mann G; Menzies S; Cust A, 2017, 'Psychoeducational intervention for people at high risk of developing another melanoma: A pilot randomised controlled trial', BMJ Open, vol. 7, http://dx.doi.org/10.1136/bmjopen-2016-015195

McKean EB; Kasparian NA; Batra S; Sholler GF; Winlaw DS; Dalby-Payne J, 2017, 'Feeding difficulties in neonates following cardiac surgery: Determinants of prolonged feeding-tube use', Cardiology in the Young, vol. 27, pp. 1203 - 1211, http://dx.doi.org/10.1017/S1047951116002845

Kasparian NA; Lieu N; Winlaw DS; Cole A; Kirk E; Sholler GF, 2017, 'EHealth literacy and preferences for eHealth resources in parents of children with complex CHD', Cardiology in the Young, vol. 27, pp. 722 - 730, http://dx.doi.org/10.1017/S1047951116001177

Marokakis S; Kasparian NA; Kennedy SE, 2017, 'Parents’ perceptions of counselling following prenatal diagnosis of congenital anomalies of the kidney and urinary tract: a qualitative study', BJU International, vol. 119, pp. 474 - 481, http://dx.doi.org/10.1111/bju.13668

te West NID; Parkin K; Hayes W; Costa DSJ; Kasparian NA; Moore KH, 2017, 'Does motivation predict outcome of pelvic floor muscle retraining?', Neurourology and Urodynamics, vol. 36, pp. 316 - 321, http://dx.doi.org/10.1002/nau.22917

Denniss D; Sholler G; Winlaw D; Kasparian N, 2017, 'Critical Appraisal of the Evidence on Quality of Life and Psychological Outcomes in Infants and Young Children with Congenital Heart Disease', Heart, Lung and Circulation, vol. 26, pp. S322 - S322, http://dx.doi.org/10.1016/j.hlc.2017.06.650

Denniss D; Sholler G; Winlaw D; Costa D; Kasparian N, 2017, 'Health-Related Quality of Life and its Determinants in Young Children with Complex Congenital Heart Disease and Their Mothers: An Australian Perspective', Heart, Lung and Circulation, vol. 26, pp. S324 - S324, http://dx.doi.org/10.1016/j.hlc.2017.06.654

Dieng M; Butow PN; Costa DSJ; Morton RL; Menzies SW; Mireskandari S; Tesson S; Mann GJ; Cust AE; Kasparian NA, 2016, 'Psychoeducational intervention to reduce fear of cancer recurrence in people at high risk of developing another primarymelanoma: results of a randomized controlled trial', Journal of Clinical Oncology, vol. 34, pp. 4405 - 4414, http://dx.doi.org/10.1200/JCO.2016.68.2278

Dieng M; Cust AE; Kasparian NA; Mann GJ; Morton RL, 2016, 'Economic evaluations of psychosocial interventions in cancer: a systematic review', Psycho-Oncology, vol. 25, pp. 1380 - 1392, http://dx.doi.org/10.1002/pon.4075

Kasparian NA; Mireskandari S; Butow PN; Dieng M; Cust AE; Meiser B; Barlow-Stewart K; Menzies S; Mann GJ, 2016, '“Melanoma: Questions and Answers.” Development and evaluation of a psycho-educational resource for people with a history of melanoma', Supportive Care in Cancer, vol. 24, pp. 4849 - 4859, http://dx.doi.org/10.1007/s00520-016-3339-3

Dieng M; Cust AE; Kasparian NA; Butow P; Costa DSJ; Menzies SW; Mann GJ; Morton RL, 2016, 'Protocol for a within-trial economic evaluation of a psychoeducational intervention tailored to people at high risk of developing a second or subsequent melanoma', BMJ open, vol. 6, pp. e012153, http://dx.doi.org/10.1136/bmjopen-2016-012153

Caleshu C; Kasparian NA; Edwards KS; Yeates L; Semsarian C; Perez M; Ashley E; Turner CJ; Knowles JW; Ingles J, 2016, 'Interdisciplinary psychosocial care for families with inherited cardiovascular diseases', Trends in Cardiovascular Medicine, vol. 26, pp. 647 - 653, http://dx.doi.org/10.1016/j.tcm.2016.04.010

McDonald HM; Sherman KA; Petocz P; Kangas M; Grant KA; Kasparian NA, 2016, 'Mindfulness and the Experience of Psychological Distress: the Mediating Effects of Emotion Regulation and Attachment Anxiety', Mindfulness, vol. 7, pp. 799 - 808, http://dx.doi.org/10.1007/s12671-016-0517-9

Celermajer D; Strange G; Cordina R; Selbie L; Sholler G; Winlaw D; Alphonso N; Justo R; Nicholae M; Kasparian N; Weintraub RG; Cheung M; Grigg LE; Brizard CP; Wheaton G; Disney P; Stewart S; Bullock A; Ramsay J; Gentles T; d'Udekem Y, 2016, 'Congenital Heart Disease Requires a Lifetime Continuum of Care: A Call for a Regional Registry', Heart Lung and Circulation, vol. 25, pp. 750 - 754, http://dx.doi.org/10.1016/j.hlc.2016.03.018

Kasparian NA; Winlaw DS; Sholler GF, 2016, '“Congenital heart health”: How psychological care can make a difference', Medical Journal of Australia, vol. 205, pp. 104 - 106.e1, http://dx.doi.org/10.5694/mja16.00392

Marokakis S; Kasparian NA; Kennedy SE, 2016, 'Prenatal counselling for congenital anomalies: a systematic review', Prenatal Diagnosis, vol. 36, pp. 662 - 671, http://dx.doi.org/10.1002/pd.4836

Costa DSJ; Dieng M; Cust AE; Butow PN; Kasparian NA, 2016, 'Psychometric properties of the Fear of Cancer Recurrence Inventory: an item response theory approach', Psycho-Oncology, pp. 832 - 838, http://dx.doi.org/10.1002/pon.4018

Ingles J; Spinks C; Yeates L; McGeechan K; Kasparian N; Semsarian C, 2016, 'Posttraumatic stressand prolonged grief after the sudden cardiac death of a young relative', JAMA Internal Medicine, vol. 176, pp. 402 - 405, http://dx.doi.org/10.1001/jamainternmed.2015.7808

Rogers Z; Elliott F; Kasparian NA; Bishop DT; Barrett JH; Newton-Bishop J, 2016, 'Psychosocial, clinical and demographic features related to worry in patients with melanoma', Melanoma Research, vol. 26, pp. 497 - 504, http://dx.doi.org/10.1097/CMR.0000000000000266

Kasparian NA; Rutstein A; Sansom-Daly UM; Mireskandari S; Tyler J; Duffy J; Tucker KM, 2015, 'Through the looking glass: An exploratory study of the lived experiences and unmet needs of families affected by Von Hippel-Lindau disease', European Journal of Human Genetics, vol. 23, pp. 34 - 40, http://dx.doi.org/10.1038/ejhg.2014.44

Blue GM; Kasparian NA; Sholler GF; Kirk EP; Winlaw DS, 2015, 'Genetic counselling in parents of children with congenital heart disease significantly improves knowledge about causation and enhances psychosocial functioning', International Journal of Cardiology, vol. 178, pp. 124 - 130, http://dx.doi.org/10.1016/j.ijcard.2014.10.119

Dieng M; Kasparian NA; Morton RL; Mann GJ; Butow P; Menzies S; Costa DSJ; Cust AE, 2015, 'The Melanoma care study: Protocol of a randomised controlled trial of a psychoeducational intervention for melanoma survivors at high risk of developing new primary disease', BMC Psychology, vol. 3, http://dx.doi.org/10.1186/S40359-015-0074-3

Ingles J; Spinks C; Yeates L; Kasparian N; Semsarian C, 2015, 'Sudden cardiac death from genetic heart disease: psychological impact to the surviving at-risk family members', Heart, Lung and Circulation, vol. 24, pp. S406 - S406, http://dx.doi.org/10.1016/j.hlc.2015.06.682

Kasparian NA; McLoone JK; Meiser B; Karatas J; Chau J; Zilliacus E, 2014, 'Perceptions of melanoma risk among Australian adolescents: Barriers to sun protection and recommendations for improvement', Australian & New Zealand Journal of Public Health, vol. 38, pp. 321 - 325, http://dx.doi.org/10.1111/1753-6405.12209

Dieng M; Watts CG; Cust AE; Kasparian NA; Morton RL; Mann GJ, 2014, 'Improving subjective perception of personal cancer risk: Systematic review and meta-analysis of educational interventions for people with cancer or at high risk of cancer', Psycho-Oncology, vol. 23, pp. 613 - 625, http://dx.doi.org/10.1002/pon.3476

Kasparian NA; Fidock B; Sholler GF; Camphausen C; Murphy DN; Cooper SG; Kaul R; Jones O; Winlaw DS; Kirk EPE, 2013, 'Parents’ perceptions of genetics services for congenital heart disease: the role of demographic, clinical, and psychological factors in determining service attendance', Genetics in Medicine, vol. 16, pp. 460 - 468, http://dx.doi.org/10.1038/gim.2013.169

Dieng M; Watts CG; Kasparian NA; Morton RL; Mann GJ; Cust AE, 2013, 'Improving Subjective Perception of Personal Cancer Risk: Systematic Review and Meta-Analysis of Educational Interventions for People With Cancer or at High Risk of Cancer', PSYCHO-ONCOLOGY, vol. 22, pp. 60 - 60, http://gateway.webofknowledge.com/gateway/Gateway.cgi?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000325687200090&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1

Bui T; Wakefield CE; Kasparian NA; Tyler J; Abbott J; Tucker K, 2013, 'Knowledge and beliefs about the risks and benefits of oral contraceptives in women at increased risk of breast/ovarian cancer.', Psycho-oncology

Gleeson MA; Meiser B; Barlow-Stewart K; Trainer A; Tucker K; Watts KJ; Friedlander M; Kasparian NA, 2013, 'Communication and information needs of women diagnosed with ovarian cancer regarding treatment-focused genetic testing', Oncology Nursing Forum, vol. 40, pp. 275 - 283, http://dx.doi.org/10.1188/13.ONF.40-03AP

McLoone J; Menzies S; Meiser B; Mann GJ; Kasparian NA, 2013, 'Psycho-educational interventions for melanoma survivors: A systematic review', Psycho - Oncology, vol. 22, pp. 1444 - 1456, http://dx.doi.org/10.1002/pon.3165

McLoone J; Watts KJ; Menzies S; Barlow-Stewart K; Mann GJ; Kasparian NA, 2013, 'Melanoma survivors at high risk of developing new primary disease: a qualitative examination of the factors that contribute to patient satisfaction with clinical care', Psycho-oncology, vol. 22, pp. 1994 - 2000, http://dx.doi.org/10.1002/pon.3243

Bui T; Wakefield CE; Kasparian NA; Tyler J; Abbott J; Tucker K, 2013, 'Oral contraceptive use in women at increased risk of breast/ovarian cancer: Knowledge and attitudes', Psycho-oncology, vol. 22, pp. 228 - 232, http://dx.doi.org/10.1002/pon.2049

Kasparian N, 2013, 'Psychological stress and melanoma: Are we meeting our patients' pscyhological needs?', Clinics in Dermatology, vol. 31, pp. 41 - 46, http://dx.doi.org/10.1016/j.clindermatol.2011.11.005

Kasparian NA, 2013, 'Psychological Care for People with Melanoma: What, When, Why and How?', Seminars in Oncology Nursing, vol. 29, pp. 214 - 222, http://dx.doi.org/10.1016/j.soncn.2013.06.007

Ingles J; Sarina T; Kasparian N; Semsarian C, 2013, 'Psychological wellbeing and posttraumatic stress associated with implantable cardioverter defibrillator therapy in young adults with genetic heart disease', International Journal of Cardiology, vol. 168, pp. 3779 - 3784, http://dx.doi.org/10.1016/j.ijcard.2013.06.006

Kasparian NA, 2013, 'Psychological aspects of familial melanoma', Familial Cancer, pp. S1 - 22

Ingles J; Sarina T; Kasparian N; Semsarian C, 2013, 'Psychological Wellbeing and Posttraumatic Stress Associated with Implantable Cardioverter Defibrillator Therapy in Young Adults with Genetic Heart Disease', Heart, Lung and Circulation, vol. 22, pp. S232 - S232, http://dx.doi.org/10.1016/j.hlc.2013.05.551

Branstrom R; Kasparian NA; Affleck P; Tibben A; Chang Y-M; Baron-Epel O; Bergman W; Chan M; Davies J; Ingvar C; Kanetsky PA; Leeuwen EV; Olsson H; Gruis NA; Brandberg Y; Newton-Bishop J, 2012, 'Perceptions of genetic research and testing among members of families with an increased risk of malignant melanoma', European Journal of Cancer, vol. 48, pp. 3052 - 3062, http://dx.doi.org/10.1016/j.ejca.2012.05.017

Kasparian NA; Branstrom R; Chang Y-M; Affleck PJ; Aspinwall LG; Tibben A; Baron-Epel O; Battistuzzi L; Bruno WJ; Chan M; Cuellar FA; Debniak T; Pjanova D; Ertmanski S; Figl A; Gonzalez MA; Hayward NK; Hocevar M; Kanetsky PA; Leachmann SA; Bergman WW; Heisele O; Palmer JM; Peric B; Puig S; Schadendorf D; Gruis NA; Newton-Bishop JA; Brandberg Y, 2012, 'Skin examination behavior: The role of melanoma history, skin type, psychosocial factors, and region of residence in determining clinical and self-conducted skin examination', Archives of Dermatology, vol. 148, pp. 1142 - 1151, http://dx.doi.org/10.1001/archdermatol.2012.1817

McLoone J; Watts KJ; Menzies S; Meiser B; Butow PN; Kasparian NA, 2012, 'When the risks are high: Psychological adjustment among melanoma survivors at high risk of developing new primary disease', Qualitative Health Research, vol. 22, pp. 1102 - 1113, http://dx.doi.org/10.1177/1049732312448542

Meiser B; Gleeson M; Kasparian NA; Barlow-Stewart K; Ryan M; Watts KJ; Menon D; Mitchell G; Tucker K, 2012, 'There is no decision to make: Experiences and attitudes toward treatment-focused genetic testing among women diagnosed with ovarian cancer', Gynecologic Oncology, vol. 124, pp. 153 - 157, http://dx.doi.org/10.1016/j.ygyno.2011.09.040

Kasparian NA; Sansom-Daly U; Mcdonald RP; Meiser B; Butow PN; Mann GJ, 2012, 'The nature and structure of psychological distress in people at high risk for melanoma: A factor analytic study', Psycho-oncology, vol. 21, pp. 845 - 856, http://dx.doi.org/10.1002/pon.1976

Dieng M; Watts C; Kasparian NA; Morton R; Mann G; Cust A, 2012, 'Improving cancer risk understanding: A systematic review of educational interventions for people with, or at high risk of, cancer', Asia-Pacific Journal of Clinical Oncology, vol. 8, pp. 343 - 343

Sholler GF; Kasparian NA; Pye VJ; Cole AD; Winlaw DS, 2011, 'Fetal and post-natal diagnosis of major congenital heart disease: Implications for medical and psychological care in the current era', Journal of Paediatrics and Child Health, vol. 47, pp. 717 - 722, http://dx.doi.org/10.1111/j.1440-1754.2011.02039.x

Winlaw DS; Badawi N; Jacobe S; Kasparian NA; Cooper SG; Murphy DN; Sherwood MC; Leclair K; Scarfe G; Sholler GF; Roberts PD, 2011, 'Hypoplastic Left Heart Syndrome in context', Journal of Paediatrics and Child Health (Vol. 48, Suppl. 2, 2012, 1–13), vol. 48, pp. e7 - e9, http://dx.doi.org/10.1111/j.1440-1754.2011.02084.x

Philipson S; Wakefield CE; Kasparian NA, 2011, 'Women’s knowledge, beliefs and information needs in relation to the risks and benefits associated with use of the oral contraceptive pill.', Journal of Women's Health, vol. 20, pp. 635 - 642, http://dx.doi.org/10.1089/jwh.2010.2455

Sholler GF; Kasparian NA; Winlaw DS, 2011, 'Congenital heart disease', Australian Doctor, pp. 27 - 34

Kasparian NA; McLoone J; Meiser B; Butow PN; Simpson JM; Mann GJ, 2010, 'Skin cancer screening behaviours among individuals with a strong family history of malignant melanoma', British Journal of Cancer, vol. 103, pp. 1502 - 1509, http://dx.doi.org/10.1038/sj.bjc.6605942

Shermann K; Kasparian NA; Mireskandari S, 2010, 'Psychological adjustment among male partners in response to women's breast/ovarian cancer risk: a theoretical review of the literature', Psycho-oncology, vol. 19, pp. 1 - 11, http://dx.doi.org/10.1002/pon.1582

Branstrom R; Kasparian NA; Chang Y; Affleck P; Tibben A; Aspinwall L; Baron-epel O; Battistuzzi L; Bergman W; Bruno W; Chan M; Cuellar F; Debniak T; Pjanova D; Ertmanski S; Figl A; Gonzalez M; Hayward N; Hocevar M; Kanetsky P; Leachmann S; Heisele O; Palmer J; Peric B; Puig S; Schadendorf D; Gruis N; Newton-bishop J; Brandberg Y, 2010, 'Predictors of Sun Protection Behaviors and Severe Sunburn in an International Online Study', Cancer epidemiology biomarkers and prevention, vol. 19, pp. 2199 - 2210, http://dx.doi.org/10.1158/1055-9965.EPI-10-0196

Branstrom R; Chang Y; Kasparian NA; Affleck P; Tibben A; Aspinwall L; Baron-epel O; Battistuzzi L; Bruno W; Chan M; Cuellar F; Debniak T; Pjanova D; Ertmanski S; Figl A; Gonzalez M; Hayward N; Hocevar M; Kanetsky P; Leaf S; Van nieuwpoort F; Heisele O; Palmer J; Peric B; Puig S; Ruffin A; Schadendorf D; Gruis N; Brandberg Y; Newton-bishop J, 2010, 'Melanoma risk factors, perceived threat and intentional tanning: an international online survey', European Journal of Cancer Prevention, vol. 19, pp. 216 - 226, http://dx.doi.org/10.1097/CEJ.0b013e3283354847

Parmar RC; Koene B; Kasparian NA; Cole A; Ayer J; Walker K; Nicholson I; Chard R; Sholler G; Badawi N; Winlaw D, 2010, 'Early and late outcomes of surgery for low birth weight infants (<2.5kg) with congenital heart disease', Cardiology in the Young, pp. 254 - 254

Sholler G; Kasparian N; Pye V; Cole A; Winlaw D, 2010, 'Functional Single Ventricle (FSV): Outcomes After Birth for a 4-Year Cohort', Heart, Lung and Circulation, vol. 19, pp. S249 - S250, http://dx.doi.org/10.1016/j.hlc.2010.06.609

Sholler G; Kasparian N; Pye V; Cole A; Winlaw D, 2010, 'Fetal Diagnosis in a Cohort of Infants Undergoing Surgery or Catheter Intervention in the First Year of Life—Diagnostic and Management Considerations', Heart, Lung and Circulation, vol. 19, pp. S249 - S249, http://dx.doi.org/10.1016/j.hlc.2010.06.608

Kasparian NA; McLoone J; Meiser B, 2009, 'Skin cancer-related prevention and screening behaviors: A review of the literature.', Journal of Behavioral Medicine, vol. 32, pp. 406 - 428, http://dx.doi.org/10.1007/s10865-009-9219-2

McLoone J; Kasparian NA; Butow PN, 2009, 'Psychological responses and coping strategies amongst melanoma patients: A systematic review of the literature.', Archives of Dermatology, vol. 145, pp. 1415 - 1427, http://dx.doi.org/10.1001/archdermatol.2009.308

Kasparian NA; Meiser B; Butow PN; Simpson JM; Mann GJ, 2009, 'Genetic testing for melanoma risk: A prospective cohort study of uptake and outcomes among Australian families', Genetics in Medicine, vol. 11, pp. 265 - 278, http://dx.doi.org/10.1097/GIM.0b013e3181993175

Wakefield CE; Juan A; Kasparian NA, 2009, 'Men at increased risk of developing breast cancer: language preferences for naming a cancer-related mutation', Genetic Testing and Molecular Biomarkers, vol. 13, pp. 395 - 398, http://dx.doi.org/10.1089/gtmb.2008.0152

Meiser B; Kasparian NA; Mitchell PB; strong K; Simpson JM; Tabassum L; Mireskandari S; Schofield PR, 2008, 'Attitudes to genetic testing in families with multiple cases of bipolar disorder', Genetic Testing, vol. 12, pp. 233 - 243, http://dx.doi.org/10.1089/gte.2007.0100

Kasparian NA; Meiser B; Butow PN; Simpson JM; Mann GJ, 2008, 'Predictors of psychological distress among individuals with a strong family history of malignant melanoma', Clinical Geriatrics, vol. 73, pp. 121 - 131, http://dx.doi.org/10.1111/j.1399-0004.2007.00949.x

Juan A; Wakefield CE; Kasparian NA; Kirk J; Tyler J; Tucker K, 2008, 'Development and pilot testing of a decision aid for men considering genetic testing for breast and /or ovarian cancer-related mutations (BRCA 1/2)', Genetic Testing, vol. 12, pp. 523 - 532, http://dx.doi.org/10.1089/gte.2008.0035

Kasparian NA; Butow PN; Meiser B; Mann GJ, 2008, 'High- and average-risk individuals’ beliefs about, and perceptions of, malignant melanoma: An Australian perspective', Psycho - Oncology, vol. 17, pp. 270 - 279, http://dx.doi.org/10.1002/pon.1230

Kasparian NA; Rutstein A; Meiser B; Koehler J; Tyler J; Tucker K, 2008, 'An exploratory study of the unmet information and support needs amongst individuals affected by one of two rare cancer syndromes: MEN2a and VHL.', Psycho-Oncology

Mcloone J; Kasparian NA; Watts K; Meiser B; Butow P; Barlow-Stewart K; Menzies S; Mann G, 2008, 'Information needs and satisfaction with clinical care among melanoma survivors at high risk of developing new primary melanomas: A qualitative evaluation.', Asia-Pacific Journal of Clinical Oncology, pp. 251 - 251

Meiser B; Mitchell PB; Kasparian NA; Strong K; Simpson JM; Mireskandari S; Tabassum L; Schofield PR, 2007, 'Attitudes toward childbearing, causal attributions for bipolar disorder and psychological distress A study of families with multiple cases of bipolar disorder', Psychological Medicine, vol. 37, pp. 1601 - 1611, http://dx.doi.org/10.1017/S0033291707000852

Wakefield CE; Kasparian NA; Meiser B; Homewood J; Kirk J; Tucker K, 2007, 'Attitudes toward genetic testing for cancer risk after genetic counseling and decision support: A qualitative comparison between hereditary cancer types', Genetic Testing, vol. 11, pp. 401 - 411, http://dx.doi.org/10.1089/gte.2007.0013

Kasparian NA; Wakefield CE; Meiser B, 2007, 'Assessment of psychosocial outcomes in genetic counseling research: An overview of available measurement scales', Journal of Genetic Counseling, vol. 16, pp. 693 - 712, http://dx.doi.org/10.1007/s10897-007-9111-6

Kasparian NA; Meiser B; Butow PN; Job RFS; Mann GJ, 2007, 'Anticipated uptake of genetic testing for familial melanoma in an Australian sample: An exploratory study', Psycho-oncology, vol. 16, pp. 69 - 78, http://dx.doi.org/10.1002/pon.1052

Kasparian NA; Meiser B; Simpson JM; Mann GJ, 2007, 'Psychological responses to genetic information: What's the story for individuals with a strong family history of melanoma?', Asia-Pacific Journal of Clinical Oncology, vol. 3, pp. A75 - A109, http://dx.doi.org/10.1111/j.1743-7563.2007.00128.x

Kasparian NA; Rutstein A; Meiser B; Tyler J; Koehler J; Tucker K, 2007, 'Development and trial of an international web-based survey to assess psychological adjustment among patients with one of two rare cancer syndromes: MEN2A and VHL', Asia-Pacific Journal of Clinical Oncology

Kasparian NA; Meiser B; Butow PN; Job RF; Mann GJ, 2006, 'Better the devil you know? High-risk individuals’ anticipated psychological responses to genetic testing for melanoma susceptibility', Journal of Genetic Counseling, vol. 15, pp. 433 - 447, http://dx.doi.org/10.1007/s10897-006-9038-3

Kasparian NA; Meiser B; Butow PN; Simpson J; Mann GJ, 2005, 'Precaution adoption, perceived risk, and psychological distress among those at high-risk of developing melanoma: Preliminary findings.', Hereditary Cancer in Clinical Practice

Kasparian NA; Meiser B; Hughes TMD; Job RFS; Mann GJ, 2003, 'An empirical study of the psychological consequences of genetic testing for melanoma susceptibility', PSYCHO-ONCOLOGY, vol. 12, pp. S196 - S196, http://gateway.webofknowledge.com/gateway/Gateway.cgi?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000183225400360&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1

Conference Papers

Watts KJ; Kasparian NA; McLoone J; Meiser B; Butow PN; Barlow-Stewart K; Menzies S; Mann G, 2010, 'Attitudes toward hypothetical genetic testing, satisfaction with clinical care, and information needs among high risk melanoma survivors: A mixed methods study', in European Journal of Human Genetics, Nature Publishing Group, London, England, presented at European Meeting on Psychosocial Aspects of Human Genetics, Gothenburg, Sweden, 12 June 2010 - 15 June 2010

Kasparian NA, 2009, 'When melanoma runs in the family: The psychological and behavioural implications of genetic testing for melanoma risk', in Voudouris N; Mrowinski V (ed.), Combined Abstracts of 2009 Australian Psychology Conferences, 44th Annual Conference of the Australian Psychological Society, Darwin, Australia, presented at 44th Annual Conference of the Australian Psychological Society, Darwin, Australia, 03 October 2009 - 04 October 2009

Kasparian NA, 2009, 'Through the looking glass: A qualitative study exploring the psychosocial experiences and unmet needs of families affected by VHL', in Proceedings of the Twelfth Australasian Conference on Familial & Genetic Aspects of Cancer, Twelfth Australasian Conference on Familial & Genetic Aspects of Cancer, Gold Coast, Australia, presented at Twelfth Australasian Conference on Familial & Genetic Aspects of Cancer, Gold Coast, Australia, 11 August 2009 - 14 August 2009

Kasparian NA; Meiser B; Butow PN; Simpson JM; Mann GJ, 2008, 'To test or not to test: Uptake of genetic testing for melanoma risk in Australia and associated psychological and behavioural implications', in Asia-Pacific Journal of Clinical Oncology, Blackwell Publishing Asia, Australia, presented at Clinical Oncological Society of Australia (COSA) Annual Scientific Meeting 2008, Sydney, Australia, 18 November 2008 - 20 November 2008

Meiser B; Kasparian NA; Lobb EA, 2008, 'Are individuals who choose to attend familial cancer clinics different to those who choose not to? Insights from cohort studies of high risk cancer families', in Proceedings of the Eleventh Australasian Conference on Familial & Genetic Aspects of Cancer 2008, Eleventh Australasian Conference on Familial & Genetic Aspects of Cancer, Couran Cove, Australia, presented at Eleventh Australasian Conference on Familial & Genetic Aspects of Cancer, Couran Cove, Australia, 21 August 2008

Juan A; Wakefield CE; Kasparian NA; Kirk J; Tyler J; Tucker K, 2008, 'Men at increased risk of developing breast cancer: A decision aid for men considering genetic testing', in Asia-Pacific Journal of Clinical Oncology, Blackwell Publishing Asia, Australia, pp. 145 - 179, presented at 35th Clinical Oncological Society of Australia (COSA) Annual Scientific Meeting, Sydney, Australia

Rutstein AN; Kasparian NA; Meiser B; Koehler J; Tyler J; Tucker K, 2008, 'An exploratory study of the information and support needs of individuals affected by one of two rare cancer syndromes: MEN2A or VHL', in Psycho - Oncology, John Wiley & Sons Ltd, Chichester, W Sussex, England, pp. S192 - S193, presented at Psycho-Oncology 2008, http://gateway.webofknowledge.com/gateway/Gateway.cgi?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000257874200366&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a

Kasparian NA; Meiser B; Butow PN; Simpson JM; Mann GK, 2008, 'Genetic risk assessment amongst Australians with a strong family history of melanoma: uptake and psychological implications', in Psycho - Oncology, John Wiley & Sons Ltd, Chichester, W Sussex, England, pp. S277 - S278, presented at Psycho-Oncology 2008, http://gateway.webofknowledge.com/gateway/Gateway.cgi?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000257874200536&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a

Kasparian NA; Meiser B; Job RFS; Mann GJ, 2002, 'The psychological consequences of genetic testing for melanoma susceptibility', in Australian Journal of Health Psychology, Postgraduate Conference, Sydney Australia, pp. 157, presented at Postgraduate Conference, Sydney Australia, 15 November 2002

Conference Presentations

McLoone J; Meiser B; Karatas J; Chau J; Zilliacus E; Kasparian NA, 2012, 'Perceptions of melanoma risk among Australia adolescents: Is this the greatest barrier to sun adherence and what can we do about it?', in Perceptions of melanoma risk among Australia adolescents: Is this the greatest barrier to sun adherence and what can we do about it?, 14th World Congress of Psycho-Oncology, Brisbane, Australia, presented at 14th World Congress of Psycho-Oncology, Brisbane, Australia

McLoone J; Kasparian NA; Meiser B; Butow PN; Barlow-Stewart K; Charles M; Mann G; Menzies S, 2011, 'Melanoma risk, clinical care and patients' fears of melanoma recurrence: what is the interplay between these factors?', in Melanoma risk, clinical care and patients' fears of melanoma recurrence: what is the interplay between these factors?, Clinical Oncological Society of Australia (COSA), 38th Annual Scientific Meeting, OZPOS/PoCoG Professional Day, Perth, Australia, presented at Clinical Oncological Society of Australia (COSA), 38th Annual Scientific Meeting, OZPOS/PoCoG Professional Day, Perth, Australia, 14 November 2011

Kasparian NA; Deans C; Bennett BK; Sholler GF; Winlaw DS; Kirk EP, 2011, 'Pregnancy disrupted: Thinking about the experiences of mothers and fathers after fetal diagnosis of congenital heart disease', in Pregnancy disrupted: Thinking about the experiences of mothers and fathers after fetal diagnosis of congenital heart disease, World Congress of Psychotherapy, Sydney, Australia, presented at World Congress of Psychotherapy, Sydney, Australia, 24 August 2011 - 28 August 2011

Kasparian NA, 2011, 'Psychological support in paediatric cardiac care: What, where, when and how?', in Psychological support in paediatric cardiac care: What, where, when and how?, Cardiac Society of Australia and New Zealand Annual Scientific Meeting, Perth Australia, presented at Cardiac Society of Australia and New Zealand Annual Scientific Meeting, Perth Australia, 11 August 2011 - 15 August 2011

Meiser B; Gleeson M; Kasparian NA; Barlow-Stewart K; Ryan M; Mitchell G; Friedlander M; Tucker K, 2010, 'Attitudes and information needs of women newly diagnosed with ovarian cancer regarding treatment-focused genetic testing', in Attitudes and information needs of women newly diagnosed with ovarian cancer regarding treatment-focused genetic testing, Human Genetics Society of Australasia Annual Scientific Meeting, Melbourne, Australia, presented at Human Genetics Society of Australasia Annual Scientific Meeting, Melbourne, Australia, 16 November 2010 - 18 November 2010

McLoone J; Kasparian NA; Watts KJ; Meiser B; Butow PN; Barlow-Stewart K; Menzies S; Mann G, 2010, 'Psychosocial adjustment and support needs of melanoma survivors receiving care at a high risk clinic: A qualitative investigation.', in Psychosocial adjustment and support needs of melanoma survivors receiving care at a high risk clinic: A qualitative investigation, Sydney Cancer Conference, Sydney, Australia, presented at Sydney Cancer Conference, Sydney, Australia, 15 July 2010 - 16 July 2010

McLoone JK; Kasparian NA; Watts KJ; Meiser B; Butow PN; Barlow-Stewart K; Menzies S; Mann GJ, 2010, 'Psychological adjustment and support needs among melanoma survivors at high risk of developing multiple primary melanomas: A qualitative evaluation', in Psychological adjustment and support needs among melanoma survivors at high risk of developing multiple primary melanomas: A qualitative evaluation, Australasian Society of Behavioural Health and Medicine 7th Annual Scientific Conference, Brisbane, Australia, presented at Australasian Society of Behavioural Health and Medicine 7th Annual Scientific Conference, Brisbane, Australia, 10 February 2010 - 12 February 2010

Kasparian NA; McLoone J; Meiser B; Butow PN; Simpson JM; Mann G, 2010, 'Skin cancer screening behaviours among individuals with a strong family history of malignant malanoma. Symposium entitled: Cancer control behaviours: Who does them, who doesn't, and why not?', in Skin cancer screening behaviours among individuals with a strong family history of malignant malanoma. Symposium entitled: Cancer control behaviours: Who does them, who doesn't, and why not?, Australasian Society of Behavioural Health and Medicine 7th Annual Scientific Conference, Brisbane, Australia, presented at Australasian Society of Behavioural Health and Medicine 7th Annual Scientific Conference, Brisbane, Australia, 10 February 2010 - 12 February 2010

McLoone J; Kasparian NA; Watts KJ; Meiser B; Butow PN; Barlow-Stewart K; Menzies S; Mann G, 2010, 'Psychological adjustment and support needs among melanoma survivors at high risk of developing multiple primary melanomas: A qualitative evaluation. Symposium entitled: Cancer control behaviours: Who does them, who doesn't, and why not?', in Psychological adjustment and support needs among melanoma survivors at high risk of developing multiple primary melanomas: A qualitative evaluation. Symposium entitled: Cancer control behaviours: Who, Australasian Society of Behavioural Health and Medicine 7th Annual Scientific Conference, Brisbane, Australia, presented at Australasian Society of Behavioural Health and Medicine 7th Annual Scientific Conference, Brisbane, Australia, 10 February 2010 - 12 February 2010

Branstrom R; Kasparian NA; Chang Y; Affleck P; Gruis N; Newton-bishop J; Brandberg Y, 2009, 'The importance of risk perception, cancer worry and skin cancer history in skin cancer screening', in The importance of risk perception, cancer worry and skin cancer history in skin cancer screening, International Melanoma Genetics Consortium Annual Scientific Meeting, Slovenia, presented at International Melanoma Genetics Consortium Annual Scientific Meeting, Slovenia, 08 June 2009 - 12 June 2009

Branstrom R; Kasparian NA; Chang Y; Affleck P; Newton-bishop J; Gruis N; Brandberg Y, 2009, 'Predictors of sun protection behaviours in an international sample', in Predictors of sun protection behaviours in an international sample, 7th World Congress on Melanoma, Vienna, Austria, presented at 7th World Congress on Melanoma, Vienna, Austria, 12 May 2009 - 16 May 2009

McLoone J; Kasparian NA; Meiser B; Butow PN; Simpson JM; Mann G, 2009, 'When the risks are high: Psychological adjustment and unmet needs in malanoma survivors at high risk of developing another melanoma.', in When the risks are high: Psychological adjustment and unmet needs in malanoma survivors at high risk of developing another melanoma., The University of New South Wales Research Showcase for Well Being, Sydney, Australia, presented at The University of New South Wales Research Showcase for Well Being, Sydney, Australia

Kasparian NA, 2008, 'Genetic testing for melanoma risk: A prospective cohort study of uptake and outcomes amongst Australian families', in Genetic testing for melanoma risk: A prospective cohort study of uptake and outcomes amongst Australian families, Meeting of the Leeds Institute of Molecular Medicine, University of Leeds, United Kingdom, presented at Meeting of the Leeds Institute of Molecular Medicine, University of Leeds, United Kingdom, 22 October 2008

Kasparian NA; Rutstein AN; Meiser B; Koehler J; Tyler J; Andrews L; Tucker K, 2008, 'Unmet information and support needs amongst individuals affected by VHL or MEN2A', in Unmet information and support needs amongst individuals affected by VHL or MEN2A, VHL Medical Symposium, Roskilde, Denmark, presented at VHL Medical Symposium, Roskilde, Denmark, 04 September 2008 - 06 September 2008

Kasparian NA; Meiser B; Butow PN; Simpson JM; Mann GJ, 2008, 'Genetic testing for melanoma risk: Psychological outcomes 12 months after notification', in Genetic testing for melanoma risk: Psychological outcomes 12 months after notification, International Melanoma Genetics Consortium Annual Scientific Meeting, Paris, France, presented at International Melanoma Genetics Consortium Annual Scientific Meeting, Paris, France, 09 June 2008 - 12 June 2008

Kasparian NA; Meiser B; Butow PN; Simpson JM; Mann GJ, 2008, 'Genetic counselling and testing for melanoma risk: A prospective study of uptake and psychological implications in Australia', in Genetic counselling and testing for melanoma risk: A prospective study of uptake and psychological implications in Australia, European Meeting on Psychosocial Aspects of Genetics (EMPAG), Barcelona, Spain, presented at European Meeting on Psychosocial Aspects of Genetics (EMPAG), Barcelona, Spain, 31 May 2008 - 03 June 2008

Kasparian NA; Meiser B; Butow PN; Simpson JM; Mann GJ, 2008, 'A psychological perspective on genetic testing for melanoma risk in Australia', in A psychological perspective on genetic testing for melanoma risk in Australia, Australasian Society of Behavioural Health and Medicine 5th Annual Scientific Conference, Sydney, Australia, presented at Australasian Society of Behavioural Health and Medicine 5th Annual Scientific Conference, Sydney, Australia, 31 January 2008 - 02 February 2008

Kasparian NA, 2007, 'Genetic testing for melanoma risk: What are the emotional and behavioural implications?', in Genetic testing for melanoma risk: What are the emotional and behavioural implications?, The University of Sydney Cancer Research Network on Cancer Screening: Communication, genetic testing and counselling, Sydney, Australia, presented at The University of Sydney Cancer Research Network on Cancer Screening: Communication, genetic testing and counselling, Sydney, Australia, 01 November 2007

Kasparian NA; Meiser B; Butow PN; Simpson JM; Mann GJ, 2007, 'Evidence for three distinct models of psychological distress amongst individuals with a strong family history of melanoma', in Evidence for three distinct models of psychological distress amongst individuals with a strong family history of melanoma, International Melanoma Genetics Consortium Annual Scientific Meeting, Lund, Sweden, presented at International Melanoma Genetics Consortium Annual Scientific Meeting, Lund, Sweden, 11 June 2007 - 14 June 2007

Kasparian NA, 2006, 'An update on progress of the Australian GenoMEL psychological research projects', in An update on progress of the Australian GenoMEL psychological research projects, Collaborators Meeting at the Department of Oncology-Pathology, Karolinska Institute, Sweden, presented at Collaborators Meeting at the Department of Oncology-Pathology, Karolinska Institute, Sweden, 01 November 2006

Mann GJ; Kasparian NA; Butow PN; Simpson JM, 2006, 'Psychosocial aspects of genetic testing for melanoma risk: A study update', in Psychosocial aspects of genetic testing for melanoma risk: A study update, International Melanoma Genetics Consortium Annual Scientific Meeting, Genoa, Italy, presented at International Melanoma Genetics Consortium Annual Scientific Meeting, Genoa, Italy, 06 June 2006 - 09 June 2006

Kasparian NA; Meiser B; Butow PN; Hughes TMD; Job RFS; Mann GJ, 2004, 'Genetic testing for melanoma susceptibility: Psychosocial issues for families at high risk', in Genetic testing for melanoma susceptibility: Psychosocial issues for families at high risk, European Meeting on Psychosocial Aspects of Genetics (EMPAG), Munich, Germany, presented at European Meeting on Psychosocial Aspects of Genetics (EMPAG), Munich, Germany, 12 June 2004 - 15 June 2004

Kasparian NA; Meiser B; Hughes TMD; Job RFS; Mann GJ, 2003, '“Better the devil you know?” Understanding individuals’ attitudes toward, and interest in, genetic testing for melanoma susceptibility', in “Better the devil you know?” Understanding individuals’ attitudes toward, and interest in, genetic testing for melanoma susceptibility, 6th Australasian Conference on Familial & Genetic Aspects of Cancer, Couran Cove, Australia, presented at 6th Australasian Conference on Familial & Genetic Aspects of Cancer, Couran Cove, Australia, 03 September 2003 - 06 September 2003

Kasparian NA; Meiser B; Hughes TMD; Job RFS; Mann GJ, 2003, 'The psychological consequences of genetic testing for melanoma susceptibility', in The psychological consequences of genetic testing for melanoma susceptibility, 6th World Congress Psycho-Oncology, Banff Alberta Canada, presented at 6th World Congress Psycho-Oncology, Banff Alberta Canada, 23 April 2003 - 27 April 2003

Conference Abstracts

Reports

Hatfield J; Murphy S; Kasparian NA; Job RFS, 2005, Risk perceptions, attitudes and behaviours regarding driver fatigue in NSW youth: The development of an evidence-based driver fatigue educational intervention strategy, Motor Accidents Authority of NSW, Report to the Motor Accidents Authority of NSW, http://www.irmrc.unsw.edu.au/documents/interventionstrategy%20report.pdf

Hatfield J; Kasparian NA; Murphy S; Job RS, 2005, Risk perceptions, attitudes and behaviours regarding driver fatigue in NSW Youth: The development of an evidence-based driver fatigue educational intervention strategy, Motor Accidents Authority of NSW, Report to the Motor Accidents Authority of NSW

Preprints

Chu KA; Schwartz C; Towner E; Kasparian N; Callaghan B, Parenting Under Pressure: A Mixed-Methods Investigation of the Impact of COVID-19 on Family Life, http://dx.doi.org/10.2139/ssrn.3741254

Chu KA; Schwartz C; Towner E; Kasparian NA; Callaghan B, Parenting Under Pressure: A Mixed-Methods Investigation of the Impact of COVID-19 on Family Life, http://dx.doi.org/10.31234/osf.io/zm39b

School of Women's and Children's Health

Associate Professor Nadine Kasparian

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Study @ WCH

Research @ WCH

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