Associate Professor Nadine Kasparian

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Academic

Discipline:

Paediatrics

Nadine Kasparian is Associate Professor in Medical Psychology at UNSW. She is also Head of Psychology at the Heart Centre for Children, where in 2010, under the auspices of The Sydney Children's Hospitals Network and UNSW Sydney, A/Prof Kasparian established Australasia's first integrated psychology research program and clinical service dedicated to childhood heart disease.

Current roles include:

National Heart Foundation Future Leader Fellow (2017-2020)
Co-Founder, Cardiac Society of Australia and New Zealand (CSANZ) Psychology and Supportive Care Working Group (2016-)
Research Lead (Quality of Life), Australia and New Zealand Fontan Registry (2015-)
Research Lead (Psychology), Australia and New Zealand Congenital Heart Disease Registry (2016-)
Chair, Psychosocial Round in Cardiac Care, Heart Centre for Children, The Sydney Children’s Hospitals Network (2010-)

Since 2007, A/Prof Kasparian has published, or had accepted for publication, over 100 journal articles, abstracts and book chapters, and 10 evidence-based interventions.

In 2015 Nadine developed the Perinatal Psychology course in the UNSW Master of Women's Health degree. This was the first time a course of this kind had been offered at UNSW. She also regularly lectures and provides workshops for a range of organisations, including NSW Institute of Psychiatry, and numerous overseas-based groups.

Society Memberships & Professional Activities:

Co-Founder, Cardiac Society of Australia and New Zealand (CSANZ) Psychology and Supportive Care Working Group (2016-)
Research Lead (Quality of Life), Australia and New Zealand Fontan Registry (2015-)
Research Lead (Psychology), Australia and New Zealand Congenital Heart Disease Registry (2016-)
Co-Leader, Behavioural Science Research Program, International Melanoma Genetics Consortium (GenoMEL)
Secretary, International Psycho-Oncology Society (IPOS) Fear of Cancer Recurrence Group
Chair, Psychosocial Round in Cardiac Care, Heart Centre for Children, The Sydney Children’s Hospitals Network (2010-)
Executive Committee, National Psycho-Oncology Clinical Trials Group (PoCoG)
Executive Committee, Australian Psychological Society Perinatal and Infant Psychology Interest Group
Scientific Advisory Committee, Sydney Children's Hospitals Network Ethics Committee
Member, Australian Psychological Society (APS)
Member, World Association for Infant Mental Health
Member, International Society of Community Genetics and Genomics

School:

Discipline of Paediatrics

Phone:

(02) 9382 5510

Email:

n.kasparian@unsw.edu.au

University role:

Senior Research Fellow (NH&MRC)

Qualifications:

BA (Psych, Hons I), PhD (Medical Psychology), Grad Certificate (Infant Mental Health), MAPS

Grants:

A/Prof Kasparian is the recipient of two research fellowships from the National Health and Medical Research Council of Australia (NHMRC). She has a career total of over $17 million in competitive research funding.

Awards:

Future Leader Fellowship, National Heart Foundation (2016).
'Rising Star Who Will Change Our World', The University of New South Wales (2015).
Award for Contribution to the Prevention or Management of Child Abuse and Neglect, The Sydney Children's Hospitals Network (2014).
International Psycho-Oncology Society Hiroomi Kawano New Investigator Award for Outstanding Contributions to Research (2011).
GenoMEL International Exchange Program Award (2011, 2008).
Dean's Rising Star Award, UNSW Medicine, University of NSW (2010).
The Kerry Lockhart Perinatal and Infant Mental Health Award (2010).
The CASS Foundation Early Career Researcher Travel Award (2010).
Excellent PhD Thesis in Psychology Award, The Australian Psychological Society (2008).
Best Presentation, Australasian Society of Behavioural Health and Medicine (2008).
Young Tall Poppy Science Award, Australian Institute of Policy & Science, NSW Office for Science and Medical Research (2007).

Research

Research activities:

A/Prof Kasparian's research focuses on improving the health and well-being of infants, children, adults and families affected by critical or chronic illness. Her multidisciplinary team of researchers and clinicians lead projects to:

Discover factors that contribute to psychological and neurobiological risk and resilience
Develop and implement cost-effective psychological interventions and treatments
Understand patient and family experiences of new and emerging health technologies
Cultivate compassionate teams in health and medicine
Rapidly translate evidence into clinical practice and health policy

To undertake this work Nadine’s team uses a variety of research designs, including:

Large, multi-centre randomised controlled trials
Health service evaluations
Prospective cohort studies
Economic evaluations and cost-effectiveness trials
In-depth qualitative analyses
Cross-sectional studies
Systematic reviews of the literature

Nadine's team is passionate about developing new and innovative ways of providing the best possible care to infants, children, adults and families from the time of medical diagnosis, through treatment, important life transitions, and beyond. This includes work involving people of all ages with complex congenital heart disease or rare and life-threatening genetic heart conditions, as well as their parents, siblings and wider family. We are also committed to better understanding and addressing the needs of bereaved families.

In addition to work in childhood heart disease, Nadine's team also applies their clinical research approach to other medical conditions, such as melanoma and other cancers, neuromuscular diseases, severe familial intellectual disability, and other critical or chronic illnesses.

Socio-economic Objective (SEO) tags:

Child Health

Mental Health Services

Behaviour and Health

Field of Research (FOR) Tag:

Paediatrics

Health, Clinical and Counselling Psychology

Cardiology (incl. Cardiovascular Diseases)

Neurobiology

Mental Health

Fetal Development and Medicine

Health and Community Services

Cancer and related disorders

Epigenetics (incl. Genome Methylation and Epigenomics)

Teaching & Supervision

Supervision keywords:

prenatal diagnosis

cancer

congenital heart defects

psychological adaptation

parents

mental health

genetics

Media

Facebook:

https://www.facebook.com/UNSWPaediatrics

Publications related to this Person

Book Chapters

Kissane DW; Kasparian NA, 2016, 'Theoretical models guiding our understanding of sibling bereavement', in Sibling Loss Across the Lifespan: Research, Practice, and Personal Stories, pp. 1 - 13, http://dx.doi.org/10.4324/781315672861

sansom-daly U; McGill B; kasparian N; Patterson P; Muscara F; Wakefield C, 2016, 'Navigating the impact of serious illness across the family system using evidence-based therapeutic approaches', in Menzies R; Kyrios M; Kazantzis N (ed.), Innovations and Future Directions in the Behavioural and Cognitive Therapies, Australian Academic Press, Queensland, pp. 176 - 181, https://www.australianacademicpress.com.au/books/details/287/Innovations_and_Future_Directions_in_the_Behavioural_and_Cognitive_Therapies

Kasparian NA; Shermann K, 2013, 'My Genes are my Destiny”: Psychosocial Aspects of Genetic Risk Assessment for Illness Susceptibility', in Caltabiano ML; Ricciardelli L (ed.), Applied Topics in Health Psychology, edn. Ist, Wiley-Blackwell, Sydney, pp. 171 - 184

Kasparian NA; Butow PN, 2012, 'Psychological responses and coping strategies in patients with skin cancer', in Rigel DS; Cockerell CJ; Friedman R; Lim H (ed.), Cancer of the Skin, edn. 2nd, Elsevier, London, http://dx.doi.org/10.1016/B978-1-4377-1788-4.00062-9

Journal articles

Lum A; Wakefield CE; Donnan B; Burns MA; Fardell JE; Jaffe A; Kasparian NA; Kennedy SE; Leach ST; Lemberg DA, 2019, 'School students with chronic illness have unmet academic, social, and emotional school needs', School Psychology, vol. 34, pp. 627 - 636, http://dx.doi.org/10.1037/spq0000311

Lum A; Wakefield CE; Donnan B; Burns MA; Fardell JE; Jaffe A; Kasparian NA; Kennedy SE; Leach ST; Lemberg DA, 2019, 'Facilitating engagement with school in students with chronic illness through positive education: A mixed-methods comparison study', School Psychology, vol. 34, pp. 677 - 686, http://dx.doi.org/10.1037/spq0000315

Kasparian NA; Kan JM; Sood E; Wray J; Pincus HA; Newburger JW, 2019, 'Mental health care for parents of babies with congenital heart disease during intensive care unit admission: Systematic review and statement of best practice', Early Human Development, vol. 139, http://dx.doi.org/10.1016/j.earlhumdev.2019.104837

Kasparian NA, 2019, 'Heart care before birth: A psychobiological perspective on fetal cardiac diagnosis', Progress in Pediatric Cardiology, vol. 54, http://dx.doi.org/10.1016/j.ppedcard.2019.101142

Marokakis S; Kasparian NA; Kennedy SE, 2019, 'Re: Caring for infants with posterior urethral valves: A qualitative study of parents' experiences', Journal of Urology, vol. 201, pp. 429, http://dx.doi.org/10.1097/01.JU.0000553675.33041.9a

Verrall CE; Blue GM; Loughran-Fowlds A; Kasparian N; Gecz J; Walker K; Dunwoodie SL; Cordina R; Sholler G; Badawi N, 2019, ''Big issues' in neurodevelopment for children and adults with congenital heart disease', Open Heart, vol. 6, http://dx.doi.org/10.1136/openhrt-2018-000998

Dieng M; Khanna N; Kasparian NA; Costa DSJ; Butow PN; Menzies SW; Mann GJ; Cust AE; Morton RL, 2019, 'Cost-Effectiveness of a Psycho-Educational Intervention Targeting Fear of Cancer Recurrence in People Treated for Early-Stage Melanoma', Applied Health Economics and Health Policy, vol. 17, pp. 669 - 681, http://dx.doi.org/10.1007/s40258-019-00483-6

Battistuzzi L; Franiuk M; Kasparian N; Rania N; Migliorini L; Varesco L, 2019, 'A qualitative study on decision-making about BRCA1/2 testing in Italian women', European Journal of Cancer Care, vol. 28, http://dx.doi.org/10.1111/ecc.13083

Ayling L; Henry A; Tracy S; Donkin C; Kasparian NA; Welsh AW, 2019, 'How well do women understand and remember information in labour versus in late pregnancy? A pilot randomised study', Journal of Obstetrics and Gynaecology, vol. 39, pp. 913 - 921, http://dx.doi.org/10.1080/01443615.2019.1575341

Paguinto SG; Kasparian NA; Bray P; Farrar M, 2019, '“It’s not just the wheelchair, it’s everything else”: Australian parents’ perspectives of wheelchair prescription for children with neuromuscular disorders', Disability and Rehabilitation, http://dx.doi.org/10.1080/09638288.2019.1595749

Wan HWY; Carey KA; D'Silva A; Kasparian NA; Farrar MA, 2019, '"Getting ready for the adult world": How adults with spinal muscular atrophy perceive and experience healthcare, transition and well-being', Orphanet Journal of Rare Diseases, vol. 14, http://dx.doi.org/10.1186/s13023-019-1052-2

Dieng M; Morton RL; Costa DSJ; Butow PN; Menzies SW; Lo S; Mann GJ; Cust AE; Kasparian NA, 2019, 'Benefits of a brief psychological intervention targeting fear of cancer recurrence in people at high risk of developing another melanoma: 12-month follow-up results of a randomized controlled trial.', Br J Dermatol, http://dx.doi.org/10.1111/bjd.17990

Tesson S; Butow PN; Sholler GF; Sharpe L; Kovacs AH; Kasparian NA, 2019, 'Psychological interventions for people affected by childhood-onset heart disease: A systematic review', Health Psychology, vol. 38, pp. 151 - 161, http://dx.doi.org/10.1037/hea0000704

Denniss DL; Sholler GF; Costa DSJ; Winlaw DS; Kasparian NA, 2019, 'Need for Routine Screening of Health-Related Quality of Life in Families of Young Children with Complex Congenital Heart Disease', Journal of Pediatrics, vol. 205, pp. 21 - 28.e2, http://dx.doi.org/10.1016/j.jpeds.2018.09.037

Kan JM; Cowan CSM; Ooi CY; Kasparian NA, 2019, 'What can the gut microbiome teach us about the connections between child physical and mental health? A systematic review', Developmental Psychobiology, vol. 61, pp. 700 - 713, http://dx.doi.org/10.1002/dev.21819

McGill BC; Wakefield CE; Vetsch J; Barlow-Stewart K; Kasparian NA; Patenaude AF; Young MA; Cohn RJ; Tucker KM, 2019, 'Children and young people's understanding of inherited conditions and their attitudes towards genetic testing: A systematic review', Clinical Genetics, vol. 95, pp. 10 - 22, http://dx.doi.org/10.1111/cge.13253

Kasparian NA; De Abreu Lourenco R; Winlaw DS; Sholler GF; Viney R; Kirk EPE, 2018, 'Tell me once, tell me soon: parents’ preferences for clinical genetics services for congenital heart disease', Genetics in Medicine, vol. 20, pp. 1387 - 1395, http://dx.doi.org/10.1038/gim.2018.16

Farrar MA; Carey KA; Paguinto S-G; Chambers G; Kasparian NA, 2018, 'Financial, opportunity and psychosocial costs of spinal muscular atrophy: an exploratory qualitative analysis of Australian carer perspectives.', BMJ open, vol. 8, pp. e020907, http://dx.doi.org/10.1136/bmjopen-2017-020907

Dieng M; Kasparian NA; Cust AE; Costa DSJ; Tran A; Butow PN; Menzies SW; Mann GJ; Morton RL, 2018, 'Sensitivity of preference-based quality-of-life measures for economic evaluations in early-stage Melanoma', JAMA Dermatology, vol. 154, pp. 52 - 59, http://dx.doi.org/10.1001/jamadermatol.2017.4701

Chong LSH; Fitzgerald DA; Craig JC; Manera KE; Hanson CS; Celermajer D; Ayer J; Kasparian NA; Tong A, 2018, 'Children’s experiences of congenital heart disease: a systematic review of qualitative studies', European Journal of Pediatrics, vol. 177, pp. 319 - 336, http://dx.doi.org/10.1007/s00431-017-3081-y

Marokakis S; Kasparian NA; Kennedy SE, 2017, 'Caring for infants with posterior urethral valves: A qualitative study of parents’ experiences', Journal of Child Health Care, vol. 21, pp. 424 - 434, http://dx.doi.org/10.1177/1367493517725833

Dieng M; Kasparian NA; Mireskandari S; Butow P; Costa D; Morton R; Mann G; Menzies S; Cust A, 2017, 'Psychoeducational intervention for people at high risk of developing another melanoma: A pilot randomised controlled trial', BMJ Open, vol. 7, http://dx.doi.org/10.1136/bmjopen-2016-015195

McKean EB; Kasparian NA; Batra S; Sholler GF; Winlaw DS; Dalby-Payne J, 2017, 'Feeding difficulties in neonates following cardiac surgery: Determinants of prolonged feeding-tube use', Cardiology in the Young, vol. 27, pp. 1203 - 1211, http://dx.doi.org/10.1017/S1047951116002845

Marokakis S; Kasparian NA; Kennedy SE, 2017, 'Parents’ perceptions of counselling following prenatal diagnosis of congenital anomalies of the kidney and urinary tract: a qualitative study', BJU International, vol. 119, pp. 474 - 481, http://dx.doi.org/10.1111/bju.13668

Liang R; Meiser B; Smith S; Kasparian NA; Lewis CR; Chin M; Long GV; Ward R; Menzies AM; Harris-Wai JN, 2017, 'Advanced cancer patients’ attitudes towards, and experiences with, screening for somatic mutations in tumours: a qualitative study', European Journal of Cancer Care, vol. 26, http://dx.doi.org/10.1111/ecc.12600

Kasparian NA; Lieu N; Winlaw DS; Cole A; Kirk E; Sholler GF, 2017, 'EHealth literacy and preferences for eHealth resources in parents of children with complex CHD', Cardiology in the Young, vol. 27, pp. 722 - 730, http://dx.doi.org/10.1017/S1047951116001177

te West NID; Parkin K; Hayes W; Costa DSJ; Kasparian NA; Moore KH, 2017, 'Does motivation predict outcome of pelvic floor muscle retraining?', Neurourology and Urodynamics, vol. 36, pp. 316 - 321, http://dx.doi.org/10.1002/nau.22917

Dieng M; Cust AE; Kasparian NA; Butow P; Costa DSJ; Menzies SW; Mann GJ; Morton RL, 2016, 'Protocol for a within-trial economic evaluation of a psychoeducational intervention tailored to people at high risk of developing a second or subsequent melanoma', BMJ open, vol. 6, pp. e012153, http://dx.doi.org/10.1136/bmjopen-2016-012153

Dieng M; Butow PN; Costa DSJ; Morton RL; Menzies SW; Mireskandari S; Tesson S; Mann GJ; Cust AE; Kasparian NA, 2016, 'Psychoeducational intervention to reduce fear of cancer recurrence in people at high risk of developing another primarymelanoma: results of a randomized controlled trial', Journal of Clinical Oncology, vol. 34, pp. 4405 - 4414, http://dx.doi.org/10.1200/JCO.2016.68.2278

Kasparian NA; Winlaw DS; Sholler GF, 2016, '“Congenital heart health”: How psychological care can make a difference', Medical Journal of Australia, vol. 205, pp. 104 - 106.e1, http://dx.doi.org/10.5694/mja16.00392

Marokakis S; Kasparian NA; Kennedy SE, 2016, 'Prenatal counselling for congenital anomalies: a systematic review', Prenatal Diagnosis, vol. 36, pp. 662 - 671, http://dx.doi.org/10.1002/pd.4836

Kasparian NA; Mireskandari S; Butow PN; Dieng M; Cust AE; Meiser B; Barlow-Stewart K; Menzies S; Mann GJ, 2016, '“Melanoma: Questions and Answers.” Development and evaluation of a psycho-educational resource for people with a history of melanoma', Supportive Care in Cancer, vol. 24, pp. 4849 - 4859, http://dx.doi.org/10.1007/s00520-016-3339-3

Costa DSJ; Dieng M; Cust AE; Butow PN; Kasparian NA, 2016, 'Psychometric properties of the Fear of Cancer Recurrence Inventory: an item response theory approach', Psycho-Oncology, pp. 832 - 838, http://dx.doi.org/10.1002/pon.4018

Celermajer D; Strange G; Cordina R; Selbie L; Sholler G; Winlaw D; Alphonso N; Justo R; Nicholae M; Kasparian N, 2016, 'Congenital Heart Disease Requires a Lifetime Continuum of Care: A Call for a Regional Registry', Heart Lung and Circulation, vol. 25, pp. 750 - 754, http://dx.doi.org/10.1016/j.hlc.2016.03.018

McDonald HM; Sherman KA; Petocz P; Kangas M; Grant KA; Kasparian NA, 2016, 'Mindfulness and the Experience of Psychological Distress: the Mediating Effects of Emotion Regulation and Attachment Anxiety', Mindfulness, vol. 7, pp. 799 - 808, http://dx.doi.org/10.1007/s12671-016-0517-9

Caleshu C; Kasparian NA; Edwards KS; Yeates L; Semsarian C; Perez M; Ashley E; Turner CJ; Knowles JW; Ingles J, 2016, 'Interdisciplinary psychosocial care for families with inherited cardiovascular diseases', Trends in Cardiovascular Medicine, vol. 26, pp. 647 - 653, http://dx.doi.org/10.1016/j.tcm.2016.04.010

Rogers Z; Elliott F; Kasparian NA; Bishop DT; Barrett JH; Newton-Bishop J, 2016, 'Psychosocial, clinical and demographic features related to worry in patients with melanoma', Melanoma Research, vol. 26, pp. 497 - 504, http://dx.doi.org/10.1097/CMR.0000000000000266

Ingles J; Spinks C; Yeates L; McGeechan K; Kasparian N; Semsarian C, 2016, 'Posttraumatic stressand prolonged grief after the sudden cardiac death of a young relative', JAMA Internal Medicine, vol. 176, pp. 402 - 405, http://dx.doi.org/10.1001/jamainternmed.2015.7808

Dieng M; Cust AE; Kasparian NA; Mann GJ; Morton RL, 2016, 'Economic evaluations of psychosocial interventions in cancer: a systematic review', Psycho-Oncology, vol. 25, pp. 1380 - 1392, http://dx.doi.org/10.1002/pon.4075

Dieng M; Kasparian NA; Morton RL; Mann GJ; Butow P; Menzies S; Costa DSJ; Cust AE, 2015, 'The Melanoma care study: Protocol of a randomised controlled trial of a psychoeducational intervention for melanoma survivors at high risk of developing new primary disease', BMC Psychology, vol. 3, http://dx.doi.org/10.1186/S40359-015-0074-3

Blue GM; Kasparian NA; Sholler GF; Kirk EP; Winlaw DS, 2015, 'Genetic counselling in parents of children with congenital heart disease significantly improves knowledge about causation and enhances psychosocial functioning', International Journal of Cardiology, vol. 178, pp. 124 - 130, http://dx.doi.org/10.1016/j.ijcard.2014.10.119

McLoone JK; Meiser B; Karatas J; Sousa MS; Zilliacus E; Kasparian NA, 2014, 'Perceptions of melanoma risk among Australian adolescents: barriers to sun protection and recommendations for improvement', Australian and New Zealand Journal of Public Health, vol. 38, pp. 321 - 325, http://dx.doi.org/10.1111/1753-6405.12209

Kasparian NA; Rutstein A; Sansom-Daly UM; Mireskandari S; Tyler J; Duffy J; Tucker KM, 2014, 'Through the looking glass: an exploratory study of the lived experiences and unmet needs of families affected by Von Hippel-Lindau disease', European Journal of Human Genetics, http://dx.doi.org/10.1038/ejhg.2014.44

Dieng M; Watts CG; Cust AE; Kasparian NA; Morton RL; Mann GJ, 2014, 'Improving subjective perception of personal cancer risk: Systematic review and meta-analysis of educational interventions for people with cancer or at high risk of cancer', Psycho-Oncology, vol. 23, pp. 613 - 625, http://dx.doi.org/10.1002/pon.3476

Dieng M; Watts CG; Kasparian NA; Morton RL; Mann GJ; Cust AE, 2013, 'Improving Subjective Perception of Personal Cancer Risk: Systematic Review and Meta-Analysis of Educational Interventions for People With Cancer or at High Risk of Cancer', PSYCHO-ONCOLOGY, vol. 22, pp. 60 - 60, http://gateway.webofknowledge.com/gateway/Gateway.cgi?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000325687200090&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1

Kasparian NA, 2013, 'Psychological aspects of familial melanoma', Familial Cancer, pp. S1 - 22

Ingles J; Sarina T; Kasparian N; Semsarian C, 2013, 'Psychological wellbeing and posttraumatic stress associated with implantable cardioverter defibrillator therapy in young adults with genetic heart disease', International Journal of Cardiology, vol. 168, pp. 3779 - 3784, http://dx.doi.org/10.1016/j.ijcard.2013.06.006

Kasparian NA; Fidock B; Sholler GF; Camphausen C; Murphy DN; Cooper SG; Kaul R; Jones O; Winlaw DS; Kirk EPE, 2013, 'Parents’ perceptions of genetics services for congenital heart disease: the role of demographic, clinical, and psychological factors in determining service attendance', Genetics in Medicine, http://dx.doi.org/10.1038/gim.2013.169

Kasparian NA, 2013, 'Psychological Care for People with Melanoma: What, When, Why and How?', Seminars in Oncology Nursing, vol. 29, pp. 214 - 222, http://dx.doi.org/10.1016/j.soncn.2013.06.007

McLoone JK; Watts KJ; Menzies SW; Barlow-Stewart K; Mann GJ; Kasparian NA, 2013, 'Melanoma survivors at high risk of developing new primary disease: a qualitative examination of the factors that contribute to patient satisfaction with clinical care', Psycho-Oncology, vol. 22, pp. 1994 - 2000, http://dx.doi.org/10.1002/pon.3243

McLoone J; Menzies S; Meiser B; Mann GJ; Kasparian NA, 2013, 'Psycho-educational interventions for melanoma survivors: a systematic review', Psycho-Oncology, vol. 22, pp. 1444 - 1456, http://dx.doi.org/10.1002/pon.3165

Bui KT; Wakefield CE; Kasparian NA; Tyler J; Abbott J; Tucker K, 2013, 'Oral contraceptive use in women at increased risk of breast/ovarian cancer: knowledge and attitudes', Psycho-Oncology, vol. 22, pp. 228 - 232, http://dx.doi.org/10.1002/pon.2049

Kasparian NA, 2013, 'Psychological stress and melanoma: Are we meeting our patients' psychological needs?', Clinics in Dermatology, vol. 31, pp. 41 - 46, http://dx.doi.org/10.1016/j.clindermatol.2011.11.005

Gleeson M; Meiser B; Barlow-Stewart K; Trainer AH; Tucker K; Watts KJ; Friedlander M; Kasparian N, 2013, 'Communication and information needs of women diagnosed with ovarian cancer regarding treatment-focused genetic testing', Oncology Nursing Forum, vol. 40, pp. 275 - 283, http://dx.doi.org/10.1188/13.ONF.40-03AP

Bui T; Wakefield CE; Kasparian NA; Tyler J; Abbott J; Tucker K, 2013, 'Knowledge and beliefs about the risks and benefits of oral contraceptives in women at increased risk of breast/ovarian cancer.', Psycho-oncology

Dieng M; Watts C; Kasparian NA; Morton R; Mann G; Cust A, 2012, 'Improving cancer risk understanding: A systematic review of educational interventions for people with, or at high risk of, cancer', Asia-Pacific Journal of Clinical Oncology, pp. 343 - 343

Meiser B; Gleeson M; Kasparian N; Barlow-Stewart K; Ryan M; Watts K; Menon D; Mitchell G; Tucker K, 2012, 'There is no decision to make: Experiences and attitudes toward treatment-focused genetic testing among women diagnosed with ovarian cancer', Gynecologic Oncology, vol. 124, pp. 153 - 157, http://dx.doi.org/10.1016/j.ygyno.2011.09.040

Winlaw DS; Badawi N; Jacobe S; Kasparian NA; Cooper SG; Murphy DN; Sherwood MC; Roberts P; Leclair K; Scarfe G, 2012, 'Hypoplastic left heart syndrome in context', Journal of Paediatrics and Child Health, vol. 48, pp. E7 - E9, http://dx.doi.org/10.1111/j.1440-1754.2011.02084.x

Kasparian NA; Sansom-Daly U; McDonald RP; Meiser B; Butow PN; Mann GJ, 2012, 'The nature and structure of psychological distress in people at high risk for melanoma: a factor analytic study', Psycho-Oncology, vol. 21, pp. 845 - 856, http://dx.doi.org/10.1002/pon.1976

McLoone J; Watts K; Menzies S; Meiser B; Butow P; Kasparian N, 2012, 'When the risks are high: Psychological adjustment among melanoma survivors at high risk of developing new primary disease', Qualitative Health Research, vol. 22, pp. 1102 - 1113, http://dx.doi.org/10.1177/1049732312448542

Kasparian NA; Bränström R; Chang YM; Affleck P; Aspinwall LG; Tibben A; Azizi E; Baron-Epel O; Battistuzzi L; Bruno W, 2012, 'Skin examination behavior: The role of melanoma history, skin type, psychosocial factors, and region of residence in determining clinical and self-conducted skin examination', Archives of Dermatology, vol. 148, pp. 1142 - 1151, http://dx.doi.org/10.1001/archdermatol.2012.1817

Bränström R; Kasparian NA; Affleck P; Tibben A; Chang YM; Azizi E; Baron-Epel O; Bergman W; Chan M; Davies J, 2012, 'Perceptions of genetic research and testing among members of families with an increased risk of malignant melanoma', European Journal of Cancer, vol. 48, pp. 3052 - 3062, http://dx.doi.org/10.1016/j.ejca.2012.05.017

Sholler G; Kasparian N; Winlaw D, 2011, 'Congenital heart disease', Australian Doctor, pp. 27 - 34

Sholler GF; Kasparian NA; Pye VE; Cole AD; Winlaw DS, 2011, 'Fetal and post-natal diagnosis of major congenital heart disease: Implications for medical and psychological care in the current era', Journal of Paediatrics and Child Health, vol. 47, pp. 717 - 722, http://dx.doi.org/10.1111/j.1440-1754.2011.02039.x

Philipson S; Wakefield CE; Kasparian NA, 2011, 'Women's Knowledge, Beliefs, and Information Needs in Relation to the Risks and Benefits Associated with Use of the Oral Contraceptive Pill', Journal of Women's Health, vol. 20, pp. 635 - 642, http://dx.doi.org/10.1089/jwh.2010.2455

Kasparian NA; McLoone JK; Meiser B; Butow PN; Simpson JM; Mann GJ, 2010, 'Skin cancer screening behaviours among individuals with a strong family history of malignant melanoma', British Journal of Cancer, vol. 103, pp. 1502 - 1509, http://dx.doi.org/10.1038/sj.bjc.6605942

Parmar RC; Koene B; Kasparian NA; Cole A; Ayer J; Walker K; Nicholson I; Chard R; Sholler G; Badawi N, 2010, 'Early and late outcomes of surgery for low birth weight infants (<2.5kg) with congenital heart disease', Cardiology in the Young, pp. 254 - 254

Sherman KA; Kasparian NA; Mireskandari S, 2010, 'Psychological adjustment among male partners in response to women's breast/ovarian cancer risk: a theoretical review of the literature', Psycho-Oncology, vol. 19, pp. 1 - 11, http://dx.doi.org/10.1002/pon.1582

Bränström R; Chang Y-M; Kasparian N; Affleck P; Tibben A; Aspinwall LG; Azizi E; Baron-Epel O; Battistuzzi L; Bruno W, 2010, 'Melanoma risk factors, perceived threat and intentional tanning: an international online survey', European Journal of Cancer Prevention, vol. 19, pp. 216 - 226, http://dx.doi.org/10.1097/cej.0b013e3283354847

Branstrom R; Kasparian NA; Chang Y-M; Affleck P; Tibben A; Aspinwall LG; Azizi E; Baron-Epel O; Battistuzzi L; Bergman W, 2010, 'Predictors of Sun Protection Behaviors and Severe Sunburn in an International Online Study', Cancer Epidemiology Biomarkers & Prevention, vol. 19, pp. 2199 - 2210, http://dx.doi.org/10.1158/1055-9965.epi-10-0196

Kasparian NA; McLoone JK; Butow PN, 2009, 'Psychological responses and coping strategies among patients with malignant melanoma: a systematic review of the literature.', Arch Dermatol, vol. 145, pp. 1415 - 1427, http://dx.doi.org/10.1001/archdermatol.2009.308

Kasparian NA; Meiser B; Butow PN; Simpson JM; Mann GJ, 2009, 'Genetic testing for melanoma risk: a prospective cohort study of uptake and outcomes among Australian families', Genetics in Medicine, vol. 11, pp. 265 - 278, http://dx.doi.org/10.1097/gim.0b013e3181993175

Wakefield CE; Juan AS; Kasparian NA, 2009, 'Men at Increased Risk of Developing Breast Cancer: Language Preferences for Naming a Cancer-Related Mutation', Genetic Testing and Molecular Biomarkers, vol. 13, pp. 395 - 398, http://dx.doi.org/10.1089/gtmb.2008.0152

Kasparian NA; McLoone JK; Meiser B, 2009, 'Skin cancer-related prevention and screening behaviors: A review of the literature', Journal of Behavioral Medicine, vol. 32, pp. 406 - 428, http://dx.doi.org/10.1007/s10865-009-9219-2

Mcloone J; Kasparian NA; Watts K; Meiser B; Butow P; Barlow-Stewart K; Menzies S; Mann G, 2008, 'Information needs and satisfaction with clinical care among melanoma survivors at high risk of developing new primary melanomas: A qualitative evaluation.', Asia-Pacific Journal of Clinical Oncology, pp. 251 - 251

Kasparian NA; Rutstein A; Meiser B; Koehler J; Tyler J; Tucker K, 2008, 'An exploratory study of the unmet information and support needs amongst individuals affected by one of two rare cancer syndromes: MEN2a and VHL.', Psycho-Oncology

Kasparian NA; Butow PN; Meiser B; Mann GJ, 2008, 'High- and average-risk individuals' beliefs about, and perceptions of, malignant melanoma: an Australian perspective', Psycho-Oncology, vol. 17, pp. 270 - 279, http://dx.doi.org/10.1002/pon.1230

Juan AS; Wakefield C; Kasparian NA; Kirk J; Tyler J; Tucker K, 2008, 'Development and pilot testing of a decision aid for men considering genetic testing for breast and/or ovarian cancer-related mutations (BRCA1/2)', Genetic Testing, vol. 12, pp. 523 - 532, http://dx.doi.org/10.1089/gte.2008.0035

Meiser B; Kasparian NA; Mitchell PB; Strong K; Simpson JM; Tabassum L; Mireskandari S; Schofield PR, 2008, 'Attitudes to genetic testing in families with multiple cases of bipolar disorder', Genetic Testing, vol. 12, pp. 233 - 243, http://dx.doi.org/10.1089/gte.2007.0100

Kasparian NA; Rutstein A; Meiser B; Tyler J; Koehler J; Tucker K, 2007, 'Development and trial of an international web-based survey to assess psychological adjustment among patients with one of two rare cancer syndromes: MEN2A and VHL', Asia-Pacific Journal of Clinical Oncology

Kasparian NA; Meiser B; Simpson JM; Mann GJ, 2007, 'Psychological responses to genetic information: What's the story for individuals with a strong family history of melanoma?', Asia-Pacific Journal of Clinical Oncology, vol. 3, pp. A75 - A109, http://dx.doi.org/10.1111/j.1743-7563.2007.00128.x

Kasparian NA; Wakefield CE; Meiser B, 2007, 'Assessment of Psychosocial Outcomes in Genetic Counseling Research: An Overview of Available Measurement Scales', Journal of Genetic Counseling, vol. 16, pp. 693 - 712, http://dx.doi.org/10.1007/s10897-007-9111-6

Kasparian NA; Meiser B; Butow PN; Job RFS; Mann GJ, 2007, 'Anticipated uptake of genetic testing for familial melanoma in an Australian sample: An exploratory study', Psycho-Oncology, vol. 16, pp. 69 - 78, http://dx.doi.org/10.1002/pon.1052

Wakefield CE; Kasparian NA; Meiser B; Homewood J; Kirk J; Tucker K, 2007, 'Attitudes toward genetic testing for cancer risk after genetic counseling and decision support: A qualitative comparison between hereditary cancer types', Genetic Testing, vol. 11, pp. 401 - 411, http://dx.doi.org/10.1089/gte.2007.0013

Meiser B; Mitchell PB; Kasparian NA; Strong K; Simpson JM; Mireskandari S; Tabassum L; Schofield PR, 2007, 'Attitudes towards childbearing, causal attributions for bipolar disorder and psychological distress: A study of families with multiple cases of bipolar disorder', Psychological Medicine, vol. 37, pp. 1601 - 1611, http://dx.doi.org/10.1017/S0033291707000852

Kasparian NA; Meiser B; Butow PN; Job RFS; Mann GJ, 2006, 'Better the devil you know? High-risk individuals' anticipated psychological responses to genetic testing for melanoma susceptibility', Journal of Genetic Counseling, vol. 15, pp. 433 - 447, http://dx.doi.org/10.1007/s10897-006-9038-3

Kasparian NA; Meiser B; Butow PN; Simpson J; Mann GJ, 2005, 'Precaution adoption, perceived risk, and psychological distress among those at high-risk of developing melanoma: Preliminary findings.', Hereditary Cancer in Clinical Practice

Kasparian NA; Meiser B; Hughes TMD; Job RFS; Mann GJ, 2003, 'An empirical study of the psychological consequences of genetic testing for melanoma susceptibility', PSYCHO-ONCOLOGY, vol. 12, pp. S196 - S196, http://gateway.webofknowledge.com/gateway/Gateway.cgi?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000183225400360&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1

Kasparian NA; Meiser B; Butow PN; Simpson JM; Mann GJ, 'Predictors of psychological distress among individuals with a strong family history of malignant melanoma', Clinical Genetics, vol. 73, pp. 121 - 131, http://dx.doi.org/10.1111/j.1399-0004.2007.00949.x

Conference Papers

Kasparian NA, 2009, 'When melanoma runs in the family: The psychological and behavioural implications of genetic testing for melanoma risk', in Voudouris N; Mrowinski V (eds.), Combined Abstracts of 2009 Australian Psychology Conferences, 44th Annual Conference of the Australian Psychological Society, Darwin, Australia, presented at 44th Annual Conference of the Australian Psychological Society, Darwin, Australia, 03 - 04 October 2009

Kasparian N; Meiser B; Butow P; Simpson J; Mann G, 2008, 'Genetic risk assessment amongst Australians with a strong family history of melanoma: uptake and psychological implications', in PSYCHO-ONCOLOGY, WILEY-BLACKWELL, pp. S277 - S278, http://gateway.webofknowledge.com/gateway/Gateway.cgi?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000257874200536&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1

Rutstein A; Kasparian N; Meiser B; Koehler J; Tyler J; Tucker K, 2008, 'An exploratory study of the information and support needs of individuals affected by one of two rare cancer syndromes: MEN2A or VHL', in PSYCHO-ONCOLOGY, WILEY-BLACKWELL, pp. S192 - S193, http://gateway.webofknowledge.com/gateway/Gateway.cgi?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000257874200366&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1

Kasparian NA; Meiser B; Butow PN; Simpson JM; Mann GJ, 2008, 'To test or not to test: Uptake of genetic testing for melanoma risk in Australia and associated psychological and behavioural implications', in Asia-Pacific Journal of Clinical Oncology, Blackwell Publishing Asia, Sydney, Australia, presented at Clinical Oncological Society of Australia (COSA) Annual Scientific Meeting 2008, Sydney, Australia, 18 - 20 November 2008

Kasparian NA; Meiser B; Lobb EA, 2008, 'Are individuals who choose to attend familial cancer clinics different to those who choose not to? Insights from cohort studies of high risk cancer families', in Proceedings of the Eleventh Australasian Conference on Familial & Genetic Aspects of Cancer 2008, Eleventh Australasian Conference on Familial & Genetic Aspects of Cancer, Couran Cove, Australia, presented at Eleventh Australasian Conference on Familial & Genetic Aspects of Cancer, Couran Cove, Australia, 18 - 21 August 2008

Juan A; Wakefield CE; Kasparian NA; Kirk J; Tyler J; Tucker K, 2008, 'Men at increased risk of developing breast cancer: A decision aid for men considering genetic testing', in Asia-Pacific Journal of Clinical Oncology, Blackwell Publishing Asia, Sydney, Australia, pp. 145 - 179, presented at 35th Clinical Oncological Society of Australia (COSA) Annual Scientific Meeting, Sydney, Australia, 01 January 2008

Kasparian NA; Meiser B; Job RFS; Mann GJ, 2002, 'The psychological consequences of genetic testing for melanoma susceptibility', in Australian Journal of Health Psychology, Postgraduate Conference, Sydney Australia, pp. 157, presented at Postgraduate Conference, Sydney Australia, 15 November 2002

Conference Presentations

Kasparian NA; McLoone J; Meiser B; Butow PN; Simpson JM; Mann G, 2010, 'Skin cancer screening behaviours among individuals with a strong family history of malignant malanoma. Symposium entitled: Cancer control behaviours: Who does them, who doesn't, and why not?', Australasian Society of Behavioural Health and Medicine 7th Annual Scientific Conference, Brisbane, Australia, presented at Australasian Society of Behavioural Health and Medicine 7th Annual Scientific Conference, Brisbane, Australia, 10 - 12 February 2010

McLoone JK; Kasparian NA; Watts KJ; Meiser B; Butow PN; Barlow-Stewart K; Menzies S; Mann GJ, 2010, 'Psychological adjustment and support needs among melanoma survivors at high risk of developing multiple primary melanomas: A qualitative evaluation', Australasian Society of Behavioural Health and Medicine 7th Annual Scientific Conference, Brisbane, Australia, presented at Australasian Society of Behavioural Health and Medicine 7th Annual Scientific Conference, Brisbane, Australia, 10 - 12 February 2010

McLoone JK; Kasparian NA; Watts KJ; Meiser B; Butow PN; Barlow-Stewart K; Menzies S; Mann GJ, 2010, 'Psychosocial adjustment and support needs of melanoma survivors receiving care at a high risk clinic: A qualitative investigation', Sydney Cancer Conference, Sydney, Australia, presented at Sydney Cancer Conference, Sydney, Australia, 15 - 16 July 2010

Meiser B; Gleeson M; Kasparian NA; Barlow-Stewart K; Ryan M; Mitchell G; Friedlander M; Tucker K, 2010, 'Attitudes and information needs of women newly diagnosed with ovarian cancer regarding treatment-focused genetic testing', Human Genetics Society of Australasia Annual Scientific Meeting, Melbourne, Australia, presented at Human Genetics Society of Australasia Annual Scientific Meeting, Melbourne, Australia, 16 - 18 November 2010

McLoone J; Kasparian NA; Meiser B; Butow PN; Simpson JM; Mann G, 2009, 'When the risks are high: Psychological adjustment and unmet needs in malanoma survivors at high risk of developing another melanoma.', The University of New South Wales Research Showcase for Well Being, Sydney, Australia, presented at The University of New South Wales Research Showcase for Well Being, Sydney, Australia, 01 January 2009

Branstrom R; Kasparian NA; Chang Y; Affleck P; Gruis N; Newton-bishop J; Brandberg Y, 2009, 'The importance of risk perception, cancer worry and skin cancer history in skin cancer screening', International Melanoma Genetics Consortium Annual Scientific Meeting, Slovenia, presented at International Melanoma Genetics Consortium Annual Scientific Meeting, Slovenia, 08 - 12 June 2009

Branstrom R; Kasparian NA; Chang Y; Affleck P; Newton-bishop J; Gruis N; Brandberg Y, 2009, 'Predictors of sun protection behaviours in an international sample', 7th World Congress on Melanoma, Vienna, Austria, presented at 7th World Congress on Melanoma, Vienna, Austria, 12 - 16 May 2009

Kasparian NA, 2008, 'Genetic testing for melanoma risk: A prospective cohort study of uptake and outcomes amongst Australian families', Meeting of the Leeds Institute of Molecular Medicine, University of Leeds, United Kingdom, presented at Meeting of the Leeds Institute of Molecular Medicine, University of Leeds, United Kingdom, 22 October 2008

Kasparian NA; Meiser B; Butow PN; Simpson JM; Mann GJ, 2008, 'Genetic testing for melanoma risk: Psychological outcomes 12 months after notification', International Melanoma Genetics Consortium Annual Scientific Meeting, Paris, France, presented at International Melanoma Genetics Consortium Annual Scientific Meeting, Paris, France, 09 - 12 June 2008

Kasparian NA; Rutstein AN; Meiser B; Koehler J; Tyler J; Andrews L; Tucker K, 2008, 'Unmet information and support needs amongst individuals affected by VHL or MEN2A', VHL Medical Symposium, Roskilde, Denmark, presented at VHL Medical Symposium, Roskilde, Denmark, 04 - 06 September 2008

Kasparian NA; Meiser B; Butow PN; Simpson JM; Mann GJ, 2008, 'A psychological perspective on genetic testing for melanoma risk in Australia', Australasian Society of Behavioural Health and Medicine 5th Annual Scientific Conference, Sydney, Australia, presented at Australasian Society of Behavioural Health and Medicine 5th Annual Scientific Conference, Sydney, Australia, 31 January - 02 February 2008

Kasparian NA; Meiser B; Butow PN; Simpson JM; Mann GJ, 2008, 'Genetic counselling and testing for melanoma risk: A prospective study of uptake and psychological implications in Australia', European Meeting on Psychosocial Aspects of Genetics (EMPAG), Barcelona, Spain, presented at European Meeting on Psychosocial Aspects of Genetics (EMPAG), Barcelona, Spain, 31 May - 03 June 2008

Kasparian NA, 2007, 'Genetic testing for melanoma risk: What are the emotional and behavioural implications?', The University of Sydney Cancer Research Network on Cancer Screening: Communication, genetic testing and counselling, Sydney, Australia, presented at The University of Sydney Cancer Research Network on Cancer Screening: Communication, genetic testing and counselling, Sydney, Australia, 01 November 2007

Kasparian NA; Meiser B; Butow PN; Simpson JM; Mann GJ, 2007, 'Evidence for three distinct models of psychological distress amongst individuals with a strong family history of melanoma', International Melanoma Genetics Consortium Annual Scientific Meeting, Lund, Sweden, presented at International Melanoma Genetics Consortium Annual Scientific Meeting, Lund, Sweden, 11 - 14 June 2007

Kasparian NA, 2006, 'An update on progress of the Australian GenoMEL psychological research projects', Collaborators Meeting at the Department of Oncology-Pathology, Karolinska Institute, Sweden, presented at Collaborators Meeting at the Department of Oncology-Pathology, Karolinska Institute, Sweden, 01 November 2006

Mann GJ; Kasparian NA; Butow PN; Simpson JM, 2006, 'Psychosocial aspects of genetic testing for melanoma risk: A study update', International Melanoma Genetics Consortium Annual Scientific Meeting, Genoa, Italy, presented at International Melanoma Genetics Consortium Annual Scientific Meeting, Genoa, Italy, 06 - 09 June 2006

Kasparian NA; Meiser B; Butow PN; Hughes TMD; Job RFS; Mann GJ, 2004, 'Genetic testing for melanoma susceptibility: Psychosocial issues for families at high risk', European Meeting on Psychosocial Aspects of Genetics (EMPAG), Munich, Germany, presented at European Meeting on Psychosocial Aspects of Genetics (EMPAG), Munich, Germany, 12 - 15 June 2004

Kasparian NA; Meiser B; Hughes TMD; Job RFS; Mann GJ, 2003, '“Better the devil you know?” Understanding individuals’ attitudes toward, and interest in, genetic testing for melanoma susceptibility', 6th Australasian Conference on Familial & Genetic Aspects of Cancer, Couran Cove, Australia, presented at 6th Australasian Conference on Familial & Genetic Aspects of Cancer, Couran Cove, Australia, 03 - 06 September 2003

Kasparian NA; Meiser B; Hughes TMD; Job RFS; Mann GJ, 2003, 'The psychological consequences of genetic testing for melanoma susceptibility', 6th World Congress Psycho-Oncology, Banff Alberta Canada, presented at 6th World Congress Psycho-Oncology, Banff Alberta Canada, 23 - 27 April 2003

Conference Abstracts

Reports

Hatfield J; Kasparian NA; Murphy S; Job RS, 2005, Risk perceptions, attitudes and behaviours regarding driver fatigue in NSW Youth: The development of an evidence-based driver fatigue educational intervention strategy, Motor Accidents Authority of NSW, Report to the Motor Accidents Authority of NSW

Hatfield J; Murphy S; Kasparian NA; Job RFS, 2005, Risk perceptions, attitudes and behaviours regarding driver fatigue in NSW youth: The development of an evidence-based driver fatigue educational intervention strategy, Motor Accidents Authority of NSW, Report to the Motor Accidents Authority of NSW, http://www.irmrc.unsw.edu.au/documents/interventionstrategy%20report.pdf

School of Women's and Children's Health

Associate Professor Nadine Kasparian

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Research @ WCH

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